Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Selected references by contributors to this issue:

Brunelli C, Constantini M, Di Giulio P, Gallucci M, Fusco F, Miccinesi G, Paci E, Peruselli C, Morino P, Piazza M, Tamburini M, Toscani F. Quality-of-life evaluation: When do terminal cancer patients and health-care providers agree? Journal of Pain and Symptom Management. 1998;15(3):151-158.

Costantini M, Toscani F, Gallucci M, Brunelli C, Miccinesi G, Tamburini M, Paci E, Di Giulio P, Peruselli C, Higginson IJ, Addington-Hall J, and the Italian Cooperative Research Group. Terminal cancer patients and timing of referral to palliative care: A multicenter prospective cohort study. Journal of Pain and Symptom Management. 1999;18:243-252.

Hearn J, Higginson IJ. On behalf of the Palliative Care Core Audit Project Advisory Group. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Quality in Health Care. 1999;8:219-227.

Higginson IJ, Hearn J. Palliative care audit: Tools, objectives and models for training in assessment, monitoring and review. In Topics in Palliative Care, Vol.4. RK Portenoy, E Bruera, eds. Oxford: Oxford Univeristy Press, in press.

Higginson IJ. Can professionals improve their assessments? Journal of Pain and Symptom Management. March 1998;15(3):149-50.

Higginson IJ. Clinical and organizational audit in palliative care. Chapter 2. In Oxford Textbook of Palliative Medicine, 2nd ed. D Doyle, GWC Hanks, N MacDonald, eds., Oxford: Oxford University Press, 1998.

Higginson IJ. Clinical audit and organizational audit in palliative care. Cancer Surveys Volume 21: Palliative Medicine: Problem Areas in Pain and Symptom Management. 1994; Imperial Cancer Research Fund.

Higginson IJ. (ed.) Clinical Audit in Palliative Care. Oxford: Radcliffe Medical Press, Ltd. 1993.

Peruselli C, Di Giuilo P, Toscani F, Gallucci M, Brunelli C, Costantini M, Tamburini M, Paci E, Miccinesi G, Addington-Hall J, Higginson IJ. Home palliative care for terminal cancer patients: a survey on the final week of life. Palliative Medicine. 1999;13:233-241.

Toscani F. On Behalf of Italian Co-operative Research Group on Palliative Medicine. Classification and staging of terminal cancer patients: rationale and objectives of a multicentre cohort prospective study and methods used. Support Care Cancer. 1996;4:56-60.

Other selected references:

Addington-Hall JM, MacDonald LD, Anderson HR, Freeling P. Dying from cancer: The views of bereaved family and friends about the experiences of terminally ill patients. Palliative Medicine. 1991;5:207-214.

Ahmedzai SH, Hunt J, Keeley V for the Trent Hospice Audit Group. Palliative Care Core Standards: A Multidisciplinary Approach, 2^nd ed. Sheffield, UK: Printing Resources, The University of Sheffield, 1998.

American Geriatrics Society. Measuring quality of care at the end of life: A statement of principles. Journal of the American Geriatrics Society. 1997;45:526-527.

Berwick DM, Godfrey AB, Roessner J. Curing Health Care: New Strategies for Quality Improvement, San Francisco: Jossey-Bass Inc. 1991.

Bruley, DK. Beyond reliability and validity: Analysis of selected quality-of-life instruments for use in palliative care. Journal of Palliative Medicine.1999;2(3):299-309

Byock IR, Teno JM, Field MJ. (eds.) Special section on measuring quality of care at life's end. Journal of Pain and Symptom Management. 1999;17(2):73-119.

Dunlop RJ, Hockley JM. Hospital-based Palliative Care Teams: The Hospital Interface, 2^nd ed. Oxford: Oxford University Press, 1998.

Edmonds PM, Stuttaford JM, Penny J, Lynch AM, Chamberlain J. Do hospital palliative care teams improve symptom control? Use of a modified STAS as an evaluation tool. Palliative Medicine. 1998;12:345-351.

Ewing G. Palliative care audit in primary care: County audit. County Audit Report. Health Services Research Group, Cambridge: University of Cambridge, 1997.

Field MJ, Cassel CK (eds.). Approaching Death: Improving Care at the End of Life. Chapter 5: Accountability and quality in end-of-life care. Washington D.C.: National Academy Press, 1997.

Kristjanson LJ. Indicators of quality of palliative care from a family perspective. Journal of Palliative Care. 1986;1:8-17.

Muldoon MF, Barger SD, Flory JD, Manuck SB. What are quality of life measurements measuring? British Medical Journal. 1998;316:542-545.

Oliviere D, Hargreaves R, Monroe B. Good Practices in Palliative Care: A Psychosocial Perspective. Aldershot, England: Ashgate Publishing Ltd., 1998.

O'Boyle CA Waldron D. Quality of life issues in palliative medicine. Journal of Neurology. 1997;244[Supplement 4]:S18-S25.

O’Neil WM, O’Connor P, Latimer EJ. Hospital palliative care services: Three models in three countries. Journal of Pain and Symptom Management. 1992;7:406-13.

Robbins M. Evaluating Palliative Care: Establishing the Evidence Base. New York & Tokyo: Oxford University Press, 1998.

Robbins M. Assessing needs and effectiveness. Is palliative care a special case? Chapter 1: Facing death. New Themes in Palliative Care. D Clark, J Hockley, S Ahmedzai, eds., 13-33. Buckingham: Open University Press, 1997.

Rogers MS, Barclay SIG, Todd CJ. Developing the Cambridge palliative audit schedule (CAMPAS): A palliative care audit for primary health care teams. British Journal of General Practice. 1998;48:1224-1227.

Smith N. The impact of terminal illness on the family. Palliative Medicine. 1990;4(2):127-35.

Stokes J, Wyer S, Crossley D. The challenge of evaluating a child bereavement programme. Palliative Medicine. 1997;11(3):179-90.