Innovations in End-of-Life Care
|Communication, Truth-telling and Advance Care Planning
January-February 1999, Vol. 1, No. 1
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The following is a list of resources available related to the current issue.
Annunziata, MA. Ethics of relationship: From communication to conversation. Annals of the New York Academy of Science 1997;809:400-410.
Barrett B, Shadick K, Schilling R, Spencer L, del Rosario S, Moua K, Vang M. Hmong/medicine interactions: Improving cross-cultural health care. Family Medicine. 1998;30(3):179-84.
Blackhall L, Murphy, S, Frank, G, Michel V & Azen, S. Ethnicity and attitudes toward patient autonomy. JAMA. 1995;274(10):820-825.
Buckman, R. How to break bad news: A guide for health care professionals. Baltimore: The Johns Hopkins University Press, 1992.
Centeno-Cortés C, Núñez-Olarte JM. Questioning diagnosis disclosure in terminal cancer patients: A prospective study evaluating patients' responses.Palliative Medicine. 1994;8:39-44.
Colvin E, Hammes BJ. If I only knew: A patient education program on advance directives. American Nephrology Nurses' Association Journal. 1991;18:557-560.
Cultural issues in palliative care (Chapter 10). In: Oxford Textbook of Palliative Medicine. Edited by D Doyle, GWC Hanks, N MacDonald, 1998;777-801. Oxford: Oxford University Press.
Ersk M, Kagawa-Singer M, Barnes D, Blackhall L, Koenig, BA. Multicultural considerations in the use of advance directives. Oncology Nursing Forum. 1998;25(10):1683-1690.
Faulkner A. ABC of palliative care: Communication with patients, families, and other professionals. British Medical Journal. 1998;316:130-132. http://www.bmj.com/cgi/content/full/316/7125/130
Fernández-Shaw Toda, M. Ars moriendi: images of death in Spanish art. European Journal of Palliative Care 1997;4(5):164-168.
Freedman, B. Offering truth: One ethical approach to the uninformed cancer patient. Archives of Internal Medicine. 1993;153(5):572-6.
Gordon, DR. Disclosure practices and cultural narratives: Understanding concealment and silence around cancer in Tuscany, Italy. [Review] Social Science and Medicine. 1997;44(10):1433-52.
Hammes BJ, Bottner W, Lapham C. Expanding frames...opening choices: reconsidering conversations about medical care when cure is not possible. Illness, Crisis, and Loss. 1998;6(4):352-356.
Hammes BJ, Kane RS. CPR practices in Wisconsin long-term care facilities. WMJ 1998;97:55-57.
Hammes BJ, Rooney BL. Death and end-of-life planning in one midwestern community. Archives of Internal Medicine. 1998;158:383-390.
Hammes BJ, Rooney BL. The relationship between end-of-life planning and the utilization of health resources in the last six months of life in one midwestern community. (In preparation).
Koenig, BA. Cultural diversity in decisionmaking about care at the end of life. In: Approaching Death: Improving Care at the End of Life. Edited by MK Field and CK Cassel, 1997;363-382. Washington, DC: National Academy Press.
Koenig, B and Gates-Williams, J. Understanding cultural difference in caring for dying patients. Western Journal of Medicine. 1995;163(3):244-249.
Miles SH, Koepp R, Weber EP. Advance end-of-life treatment planning: a research review. Archives of Internal Medicine. 1996;156:1062-1068.
Núñez Olarte JM. Care of the dying in XVIIIth century Spain: The non-hospice tradition. European Journal of Palliative Care (in press).
Núñez Olarte JM, Centeno Cortés C. Truth telling: The hispanic perspective. Topics in Palliative Care. Oxford: Oxford University Press (in press).
Sehgal AR, Weisheit C, Miura Y, Butzlaff M, Kielstein R, Taguchi Y. Advance directives and withdrawal of dialysis in the United States, Germany, and Japan. Journal of the American Medical Association 1996;276(20):1652-1656.
Solomon MZ. et al. Advance Care Planning. In: Decisions Near the End of Life: Annotated Bibliographies on 10 Topics in End-of-Life Care, 1997. Newton, MA: Education Development Center, Inc. (To order, call Stacy Piszcz at 617-969-7100, ext. 2388)
Surbone, A. Truth telling to the patient. [Letter from Italy]. Journal of the American Medical Association. 1992;268(13):1661-1662.
Teno JM, Lynn J. Putting advance-care planning into action. Journal of Clinical Ethics. 1996;7:205-214.
Thomsen OO, Wulff HR, Alessandro M, et al. What do gastroenterologists in Europe tell cancer patients? Lancet 1993;341 (8843):473-476.
Voltz R, Akabayashi A, Reese C, Ohi G, Sass H-M. End-of-life decisions and advance directives in palliative care: A cross-cultural survey of patients and health-care professionals. Journal of Pain and Symptom Management. 1998;16:153-162.
|Last Updated: July 17th, 2000|
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