Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Selected articles by contributors to this issue:

Gilligan T, Raffin TA. Physician virtues and communicating with patients. New Horizons. 1997;5(1):6-14.

Gilligan T, Raffin TA. Whose death is it, anyway?" Annals of Internal Medicine. 1996;125:137-141.

Gilligan T, Raffin TA. End-of-life discussions with patients. Timing and truth-telling. Chest. 1996;109(1):11-12.

Neff P, Lyckholm L, Smith T. Truth or consequences: What to do when the patient doesn't want to know. Journal of Clinical Oncology. 2002;20(13):3035-3037.

Simpson DA, Pitorak EF. Hospice or palliative care? American Journal of Hospice and Palliative Care. 1998;15(2):122-123.

Smith TJ, Hillner BE. Ensuring quality cancer care by the use of clinical practice guidelines and critical pathways. Journal of Clinical Oncology. 2001;19(11):2886-2897.

Smith TJ. Future strategies needed for palliative care. Seminars in Radiation Oncology. 2000;10(3):254-261.

Smith TJ. Tell it like it is. Journal of Clinical Oncology. 2000;18(19):3441-3445.

Smith TJ. Health service studies in the terminally ill cancer patient. Cancer Treatment and Research. 1998;97:81-97.

Smith TJ, Hillner BE, Mitchell RB. Decision analysis in non-small cell lung cancer: Not back to the drawing modeling board, back to the bedside. Journal of Clinical Oncology. 1997;15(3):870-872.

Walsh D, Gombeski WR Jr, Goldstein P, Hayes D, Armour M. Managing a palliative oncology program: The role of a business plan. Journal of Pain and Symptom Management.1994;9(2):109-118.

Other targeted references:

Abrahm JL, Hansen-Flaschen J. Hospice care for patients with advanced lung disease. Chest. 2002;121:220-229.

Back A. Oncology and palliative care: Are oncologists evil, or just oblivious? Journal of Palliative Medicine.2000;3(1):107-108.

Barnes EA, Hanson J, Neumann CM, Nekolaichuk CL, Bruera E. Communication between primary care physicians and radiation oncologists regarding patients with cancer treated with palliative radiotherapy. Journal of Clinical Oncology. 2000;18(5):2902-2907.

Batikas Whedon M, Meyer LP. Metastatic pancreatic cancer: Meeting palliative care needs. Cancer Practice. 2001;9(4):164-169.

Block SD. Perspectives on care at the close of life. Psychological considerations, growth, and transcendence at the end of life: The art of the possible. Journal of the American Medical Association. 2001;285(22):2898-2905.

Brenneis C, Bruera E. Models for the Delivery of Palliative Care: The Canadian Model. In Topics in Palliative Care, E Bruera, RK Portenoy (eds.). New York: Oxford University Press, 2001, 3-23.

Bruera E, Neumann CM, Gagnon B, Brenneis C, Kneisler P, Selmser P, Hanson J. Edmonton Regional Palliative Care Program: Impact on patterns of terminal cancer care. Canadian Medical Association Journal. 1999;161(3):290-293.

Bruera E, Pereira J. The Research Palliative Care Unit. In Palliative Care and Rehabilitation of Cancer Patients, CF von Gunten (ed.). Boston: Kluwer Academic Publishers, 1999, 161-183.

Bruera E, Lawlor P. Defining palliative care interventions. Journal of Palliative Care. 1998;14(2):23-24.

Bruera E, Pereira J. Recent developments in palliative cancer care. Acta Oncologica. 1998;37(7-8):749-757.

Brundage MD, Feldman-Stewart D, Cosby R, Gregg R, Dixon P, Yousseff Y, Mackillop WJ. Cancer patients' attitudes toward treatment options for advanced non-small cell lung cancer: Implications for patient education and decision support. Patient Education and Counseling. 2001;45(2):149-157.

Byock IR, Merriman MP. Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index. Palliative Medicine. 1998;12:231-244.

Cancer.gov. Small Cell Lung Cancer (PDQ^®): Treatment. Health professional version. Modified June 2002. www.cancer.gov/cancer_information/doc_pdq.aspx?version=provider&viewid=0c22f1bd-4315-4727-8330-79549c8237f3.

Cancer.gov. Non-small Cell Lung Cancer (PDQ^®): Treatment. Health professional version. Modified June 2002. www.cancer.gov/cancer_information/doc_pdq.aspx?version=provider&viewid=1b299ff5-e610-4d11-a121-b32aefc7ec2c.

Cancer.gov. Transitional Care Planning (PDQ^®). Health professional version. Modified April 2002. www.cancer.gov/cancer_information/doc_pdq.aspx?viewid=7415374C-98B7-4ECC-A98F-1CD24557342C&version=1.

Carney DN. Lung cancer—time to move on from chemotherapy. New England Journal of Medicine. 2002;346(2):126-128.

Cherny NI, Catane R. Palliative medicine and the medical oncologist. Hematology/Oncology Clinics of North America. 1996;10(1):1-19.

Chochinov HM. Dignity-conserving care—a new model for palliative care: helping the patient feel valued. Journal of the American Medical Association. 2002;287:2253-2260.

Claessens MT, Lynn J, Zhong Z, Desbiens NA, Phillips RS, Wu AW, Harrell Fe Jr, Connors AF Jr. Dying with lung cancer or chronic obstructive pulmonary disease: Insights from SUPPORT, Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Journal of the American Geriatrics Society. 2000;48(5 Suppl): S146-153.

Detmar SB, Muller MJ, Schornagel JH, Wever LDV, Aaronson NK. Role of health-related quality of life in palliative chemotherapy treatment decisions. Journal of Clinical Oncology. 2002;20(4):1056-1062.

Edmonds P, Karlsen S, Khan S, Addington-Hall J. A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Palliative Medicine. 2001;15(4):287-295.

Fainsinger RL, Bruera E, MacMillan K. Innovative palliative care in Edmonton. Canadian Family Physician. 1977;43:1983-1992.

Foley KM, Gelband H (eds.) and the National Cancer Policy Board of the Institute of Medicine. Improving Palliative Care for Cancer. Washington, DC: National Academy Press, 2001. Visit www.iom.edu/iom/iomhome.nsf/WFiles/PallativeCare8pager/$file/PallativeCare8pager.pdf to access a summary of this document.

Gattellari M, Voigt KJ, Butow PN, Tattersall MH. When the treatment goal is not cure: Are cancer patients equipped to make informed decisions? Journal of Clinical Oncology. 2002;20(2):503-513.

Glare PA, Virik K. Can we do better in end-of-life care? The mixed management model and palliative care. Medical Journal of Australia. 2001;175:530-533.

Gridelli C, Perrone F, Nelli F, Ramponi S, De Marinis F. Quality of life in lung cancer patients. Annals of Oncology. 2001;12 (Suppl 3):S21-25.

Hansen-Flaschen J. Advanced lung disease. Palliation and terminal care. Clinics in Chest Medicine. 1997;18:645-655.

Higginson IF, Finlay I, Goodwin DM, Cook AM, Hood K, Edwards AGK, Douglas HR, Norman CE. Do hospital-based palliative teams improve care for patients or families at the end of life? Journal of Pain and Symptom Management. 2002;23(2): 96-106.

Holland JC, Lewis S. The Human Side of Cancer Care. New York: Harper Collins, 2000.

Homsi J, Walsh D, Nelson KA, LeGrand SB, Davis M, Khawam E, Nouneh C. The impact of a palliative medicine consultation service in medical oncology. Supportive Care of Cancer. 2002;10(4):337-342.

MacDonald N. Redefining symptom management. Journal of Palliative Medicine. 2002;5:301-304.

MacDonald N. Best supportive care. Cancer Prevention & Control. 1998;2(4):191-192.

MacDonald N. Palliative care—an essential component of cancer control. Canadian Medical Association Journal. 1998;158(13):1709-1716.

Meystre CJN, Burley NMJ, Ahmedzai S. What investigations and procedures do patients in hospices want? Interview based survey of patients and their nurses. British Medical Journal. 1997;315:120201203. http://bmj.com/cgi/content/full/315/7117/1202?view=full&pmid=9393223

Middleton MR, Thatcher N, Hopwood P. Palliative Chemotherapy. In Lung Cancer: Principles and Practice, 2d ed., HI Pass, JB Mitchell, DH Johnson, AT Turrisi, JD Minna (eds.). Philadelphia: Lippincott Williams & Wilkins, 2000, 995-1005.

Montazeri A, Gillis CR, McEwen J. Quality of life in patients with lung cancer: A review of literature from 1970 to 1995. Chest. 1998;113:467-481.

Nuland SB. How We Die: Reflections on Life's Final Chapter. New York: Alfred A. Knopf, 1994, 222-241.

Numico G, Russi E, Merlano M. Best supportive care in non-small cell lung cancer: Is there a role for radiotherapy and chemotherapy? Lung Cancer. 2001;32(3):213-226.

Oneschuk D, Bruera E. Access to palliative medicine training for Canadian family medicine residents. Palliative Medicine. 1998;12:23-27.

Osse BHP, Vernooij-Dassen MJFJ, Schade E, de Vree B, van den Muijsenbergh METC, Grol RPTM. Problems to discuss with cancer patients in palliative care: A comprehensive approach. Patient Education and Counseling. 2002;47(3):195-204.

Progress Review Group. Report of the Lung Cancer Progress Review Group. Baltimore, MD: National Cancer Institute, 2001. prg.nci.nih.gov/pdfprgreports/2001lung.pdf.

President's Cancer Panel. Cancer Care Issues in the United States—Quality of Care, Quality of Life. Baltimore, MD: National Cancer Institute, 1998. deainfo.nci.nih.gov/advisory/pcp/pcp97-98rpt/pcp97-98rpt.htm.

Sawyers M. What to say when treatment fails. Oncology Issues. 2002;17(3):44-45. Available at Medscape (www.medscape.com/viewarticle/439019_print)

Silvestri GA. Palliation for the dying patient with lung cancer. Respiratory Care. 2000;45:1490-1500.

Simmonds P. Managing patients with lung cancer. New guidelines should improve standards of care. British Medical Journal. 1999;319:527-528. bmj.com/cgi/content/full/319/7209/527

Sullivan FJ. Palliative Radiotherapy. In Lung Cancer: Principles and Practice, 2d ed., HI Pass, JB Mitchell, DH Johnson, AT Turrisi, JD Minna (eds.). Philadelphia: Lippincott Williams & Wilkins, 2000, 1006-1025.

Taboada P, Bruera E. Ethical decision making on communication in palliative cancer care: A personalist approach. Supportive Care of Cancer. 2001;9(5):335-343.

Taube AW, Bruera E. Is this patient palliative? Journal of Palliative Care. 1999; 15(1):53-55.

von Gunten CF, Martinez J. Role of palliative medicine in cancer patient care. Cancer Treatment and Research. 2000;102:65-76.