Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Selected articles by contributors to this issue:

AHA Technical Panel on Biomedical Ethics. Values in Conflict: Resolving Ethical Issues in Health Care, 2nd edition. Chicago: American Hospital Association, 1994. [Gail M. Lovinger is a primary author.]

Warren R. Improving care at the end of life. Supportive Voice. 2000;6(1):11-12.

Other targeted references:

Albrecht TL, Blanchard C, Ruckdeschel JC, Coovert M, Strongbow R. Strategic physician communication and oncology clinical trials. Journal of Clinical Oncology. 1999;17(10):3324-3332.

Bourbeau J, Julien M, Maltais F, Rouleau M, Beaupre A, Begin R, Renzi P, Nault D, Borycki E, Schwartzman K, Singh R, Collet JP; Chronic Obstructive Pulmonary Disease axis of the Respiratory Network Fonds de la Recherche en Sante du Quebec. Reduction of hospital utilization in patients with chronic obstructive pulmonary disease: A disease-specific self-management intervention. Archives of Internal Medicine. 2003;163(5):585-591.

Bridge M, Roughton DI, Lewis S, Barelds J, Brenton S, Cotter S, Hagebols ML, Woolman K, Annells M, Koch T. Using caregivers-as-proxies to retrospectively assess and measure quality of dying of palliative care clients. The American Journal of Hospice and Palliative Care. 2002;19(3):193-199.

Bruera E, Neumann CM, Gagnon B, Brenneis C, Kneisler P, Selmser P, Hanson J. Edmonton Regional Palliative Care Program: Impact on patterns of terminal cancer care. Canadian Medical Association Journal. 1999;161(3):290-293.

Byock IR, Merriman MP. Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index. Palliative Medicine. 1998;12:231-244.

Cella D. Manual of the Functional Assessment of Chronic Illness Therapy (FACIT) scales (version 4). Evanston, IL: Northwestern University, 1997.

Claessens MT, Lynn J, Zhong Z, Desbiens NA, Phillips RS, Wu AW, Harrell FE Jr, Connors AF Jr.Dying with lung cancer or chronic obstructive pulmonary disease: Insights from SUPPORT. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Journal of the American Geriatric Society. 2000 May;48(5 Suppl):S146-153.

Edmonds P, Karlsen S, Khan S, Addington-Hall J. A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Palliative Medicine. 2001;15(4):287-295.

Fairclough DL & Cella DF. Functional assessment of cancer therapy (FACT-G): Non-response to individual questions. Quality of Life Research. 1996;5:321-329.

Fan VS, Curtis JR, Tu SP, McDonell MB, Fihn SD; Ambulatory Care Quality Improvement Project Investigators. Using quality of life to predict hospitalization and mortality in patients with obstructive lung diseases. Chest. 2002 Aug;122(2):429-436.

Foley KF, Gelband H (eds.) and the National Cancer Policy Board of the Institute of Medicine. Improving Palliative Care for Cancer. Washington, DC: National Academy Press, 2001. Visit www.iom.edu and click on "Reports released in 2001" to access this document.

Giggs JS, McCoy AS, Gibbs LM, Rogers AE, Addington-Hall JM. Living with and dying from heart failure: The role of palliative care. Heart. 2002;88(Suppl 2):ii36-39.

Hibbert D, Hantratty B, May C, Mair F, Litva A, Capewell S. Negotiating palliative care expertise in the medical world. Social Science & Medicine. 2003;57(2):277-288.

Horrobin DF. Are large clinical trials in rapidly lethal diseases usually unethical? Lancet. 2003;361:695-697.

Hospital-Hospice Partnerships in Palliative Care: Creating a Continuum of Service. A joint project of the National Hospice and Palliative Care Organization and the Center to Advance Palliative Care. New York: Center to Advance Palliative Care, 2001. Available for download at www.capcmssm.org/Files/tmp_134090747.pdf. [pp. 42-45 spotlight University of California Davis’ Simultaneous Care Project featured in this issue of Innovations]

Joffe S, Cook EF, Cleary PD, Clark JW, Weeks JC. Quality of informed consent in cancer clinical trials: A cross sectional Survey. Lancet. 200l;358 (9295):1772-1777.

Katon W, Von Korff M, Lin E, Simon G. Rethinking practitioner roles in chronic illness: The specialist, primary care physician, and the practice nurse. General Hospital Psychiatry. 2001;23(3):138-144.

Kilo CM. A framework for collaborative improvement: Lessons from the Institute for Healthcare Improvement's Breakthrough Series. Quality Management in Health Care. 1998;6(4):1-13.

Lewis S, Bridge M, Roughton D, Barelds J, Brenton S, Cotter S, Hagebols ML, Woolman K, Annells M, Koch T. Quality of life issues identified by palliative care clients using two tools. Contemporary Nurse. 2002;12(1):31-41.

London MR. Measuring end-of-life care. Supportive Voice. 2003;9(1):12-15.

Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM. Patterns of functional decline at the end of life. Journal of the American Medical Association. 2003;289(18):2387-2392.

Osse BHP, Vernooij-Dassen MJFJ, Schade E, de Vree B, van den Muijsenbergh METC, Grol RPTM. Problems to discuss with cancer patients in palliative care: A comprehensive approach. Patient Education and Counseling. 2002;47(3):195-204.

Pattison M, Romer AL. Improving Care Through the End of Life. Innovations in End-of-Life Care. 2000;2(5):www2.edc.org/lastacts/archives/archivesSept00/fipattison.asp.

Ryndes T, Emanuel L. Is discontinuity in palliative care a culpable act of omission?
Hastings Center Report. 2003 Mar-Apr;Suppl:S45-7.

Shapiro R, Byock I, Parker S, Twohig JS. Living and Dying Well with Cancer: Successfully Integrating Palliative Care and Cancer Treatment. Missoula, Montana: Promoting Excellence in End-of-Life Care, 2003. Available for download at www.promotingexcellence.org/cancer. [pp. 12-15 spotlight University of California Davis’ Simultaneous Care Project featured in this issue of Innovations]

Steinhauser KE, Bosworth HP, Clipp EC, McNeilly M, Christakis NA, Parker J, Tulsky JA. Initial assessment of a new instrument to measure quality of life at the end of life. Journal of Palliative Medicine. 2002;5(6):829-841.

Steinhauser KE, Clipp EC, Tulsky JA. Evolution in measuring the quality of dying.
Journal of Palliative Medicine. 2002;5(3):407-414.

Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: Observations of patients, families, and providers.
Annals of Internal Medicine. 2000;132(10):825-832.

Trandum G. Improving Care Through the End of Life. Innovations in End-of-Life Care. 2000;2(5):www2.edc.org/lastacts/archives/archivesSept00/fitrandum.asp.

Wagner EH, Glasgow RE, Davis C, Bonomi AE, Provost L, McCulloch D, Carver P, Sixta C. Quality improvement in chronic illness care: A collaborative approach. Joint Commission Journal on Quality Improvement. 2001;27(2):63-80.

The Washington Home Center for Palliative Care Studies. Living with Advanced Congestive Heart Failure: A Guide for Family Members. Washington, DC: The Washington Home Center for Palliative Care Studies, 2002. Available for download at www.medicaring.org/educate/download/chfbookfinal.pdf.

The Washington Home Center for Palliative Care Studies. Living with Advanced Lung Disease: A Guide for Family Members. Washington, DC: The Washington Home Center for Palliative Care Studies, 2002. Available for download at www.medicaring.org/educate/download/copdbookfinal.pdf.