Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Selected articles by contributors to this issue:

Hunt L, Marshall M, Rowlings C, eds. Past Trauma in Late Life: European Perspectives on Therapeutic Work. London: Jessica Kingsley Publishers, Ltd. 1997.

Hurley AC, Volicer BJ, Hanrahan PA, Houde S & Volicer L. Assessment of discomfort in advanced Alzheimer patients. Research in Nursing and Health. 1992;15:369-377.

Hurley AC, Bottino, R & Volicer L. Nursing role in advance proxy planning for Alzheimer patients. CARING Magazine. 1994;13:72-76.

Judd S, Marshall M, Phippen P, eds. Design for Dementia. London: Hawker Publications. 1998.

Marshall M. "I Can't Place This Place At All": Working with People with Dementia and their Carers. Birmingham, UK: Venture Press. 1996.

Marshall M, ed. The State of Art in Dementia Care. London: Centre for Policy on Aging. 1997.

Trudeau SA. Bright Eyes: A structured sensory stimulation intervention. In: Enhancing the Quality of Life in Advanced Dementia. Volicer L and Bloom-Charette L, eds. Philadelphia: Taylor & Francis. 1999;93-106.

Trudeau SA. Prevention of physical impairment in persons with advanced Alzheimer's disease. In: Enhancing the Quality of Life in Advanced Dementia. Volicer L and Bloom-Charette L, eds. Philadelphia: Taylor & Francis. 1999;80-90.

Volicer L. Goals of care in advanced dementia: Comfort, dignity, and psychological well-being. American Journal of Alzheimer's Disease. 1997 (September/October):196-197.

Volicer L & Bloom-Charette L, eds. Enhancing the Quality of Life in Advanced Dementia. Philadelphia: Taylor & Francis. 1999.

Volicer L & Hurley A., eds. Hospice Care for Patients with Advanced Progressive Dementia. New York, NY: Springer Publishing Company. 1998.

Volicer L, Collard A, Hurley A, Bishop C, Kern D & Karon S. Impact of special care unit for patients with advanced Alzheimer's disease on patients' discomfort and costs. Journal of the American Geriatric Society. 1994;42:597-603.

Volicer L, Rheaume Y, Brown J, Fabiszewski K & Brady R. Hospice approach to the treatment of patients with advanced dementia of the Alzheimer type. Journal of the American Medical Association. 1986;256:2210-2213.

Volicer L, Rheaume Y, Riley ME, Karner J & Glennon M. Discontinuation of tube feeding in patients with dementia of the Alzheimer type. American Journal of Alzheimer Care. 1990;5:22-25.

Selected family and patient perspectives:

Bayley J. Elegy for Iris. New York: St. Martin's Press. 1999.

Dyer J. In a Tangled Wood: An Alzheimer's Journey. Dallas: Southern Methodist University Press.  1996.

Friel-McGowin, D. Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's. Thorndike, ME: Thorndike. 1994.

Ewing WA. Tears in God's Bottle: Reflections on Alzheimer's Caregiving. Tucson, AZ: White-Stone Circle Press. 1999.

Other selected citations:

Agency for Healthcare Policy and Research. Clinical Practice Guideline, Recognition and Initial Assessment of Alzheimer's Disease and Related Dementias. Guideline No. 19. Rockville, MD: US Department of Health and Human Services, Public Health Service, Agency for Healthcare Policy and Research. AHCPR Publication No. 97-R123, September 1996.

A Guideline Overview, with information about ordering or downloading is available on line at http://www.ahcpr.gov/clinic. Click on Clinical Practice Guidelines Online. A Quick Reference Guide for Clinicians and a Consumer Version (in English and Spanish) also are available at that website.

Albert SM, Logsdon RG, eds. Assessment of quality of life in Alzheimer's disease. Special issue of the Journal of Mental Health and Aging. 1999;5(1).

Coon DW & Edgerly ES. The personal and social consequences of Alzheimer disease. Genetic Testing. 1999;3(1):29-36.

Eccles M, Clarke J, Livingston M, Freemantle N & Mason J. North of England evidence based guidelines development project: Guideline for the primary care management of dementia.British Medical Journal 1998;317:802-808. http://www.bmj.com/cgi/content/full/317/7161/802

Eloniemi-Sulvaka U, Sivenius J & Sulkava R. Support program for demented patients and their carers: The role of dementia family care coordinator is crucial. In: Alzheimer's Disease and Related Disorders. K Iqbal, DF Swaab, B Winblad and HM Wisniewski, eds. New York: John Wiley & Sons Ltd. 1999;795-802.

Jennings B. A life greater than the sum of its sensations: Ethics, dementia, and the quality of life. Journal of Mental Health and Aging. 1999;5(1):95-106.

Kovach C, ed. Late Stage Dementia Care: Basic Guide. Basingstoke, United Kingdom: Taylor & Francis. 1996.

Kuhn DR, Ortigara A, Farran CJ. A continuum of care in Alzheimer's Disease. Advance Practice Nursing Quarterly. 1997;2(4):15-21.

Lyman K. Day In, Day Out with Alzheimer's Care: Stress in Caregiving Relationships. Philadelphia: Temple University Press. 1993.

Maguire CP, Kirby M, Coen R, Coakley D, Lawlor BA & O'Neil D. Family members' attitudes toward telling the patient with Alzheimer's disease their diagnosis. British Medical Journal. 1996;313:529-530. http://www.bmj.com/cgi/content/full/313/7056/529

Mahoney DF. A content analysis of an Alzheimer family caregivers virtual focus group. American Journal of Alzheimer's Disease. 1998;13(6):309-316.

Mittleman MS, Ferris SH, Shulman E, Steinberg G & Levin B. A family intervention to delay nursing home placement of patients with Alzheimer's disease: A randomized controlled trial. Journal of the American Medical Association. 1996; 276: 1725-1731.

National Broadcasting Company. Dateline NBC. Days to remember: Alzheimer's patients meet in writers' group to preserve memories and support one another . (Transcript of broadcast, August 31, 1998.) National Broadcasting Company, Inc.: NBC News Transcripts. 1998.

Nelson JL & Nelson HL. Alzheimer's: Answers to Hard Questions for Families. New York: Main Street Books. 1997.

Post SG. The Moral Challenge of Alzheimer's Disease. Baltimore, MD: The Johns Hopkins University Press. 1995.

Post SG & Whitehouse PJ. Fairhill guidelines on ethics of the care of people with Alzheimer's disease: A clinical summary. Journal of the American Geriatrics Society. 1995;43:1423-1429.

Small GW, Rabins P, Barry PP, Buckholtz NS, DeKosky ST, Ferris SH, Finkel SI, Gwyther LP, Khachaturian AS, Lebowitz BD, McRae TD, Morris JC, Oakley F, Schneider LS, Streim JE, Sunderland T, Teri, LA & Tune LE. Diagnosis and treatment of Alzheimer disease and related disorders. Consensus statement of the American Association for Geriatric Psychiatry, the Alzheimer's Association, and the American Geriatrics Society. Journal of the American Medical Association. 1997;278:1363-1371.

Solomon MZ & Jennings B. Palliative care for Alzheimer patients: Implications for institutions, caregivers, and families. In: Hospice Care for Patients with Advanced Progressive Dementia. Volicer L & Hurley AC, eds. New York: Springer Publishing Company. 1998, pp. 132-154.

Tappen RM, Williams C, Fishman S, Touhy T. Persistence of self in advanced Alzheimer's disease. Image: Journal of Nursing Scholarship. 1999;31(2):121-125.

Treatment of Agitation in Older Persons with Dementia. (Review.) Postgraduate Medicine 1998; Apr; Spec. No.:1-88.