Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Selected articles by contributors to this issue:

Mattimore TJ, Wenger, NS, Desbiens NA, Teno JM, Hamel MB, Liu H, Califf R, Connors AF Jr, Lynn J, Oye RK. Surrogate and physician understanding of patients’ preferences for living permanently in a nursing home. Journal of the American Geriatrics Society. 1997;45(7):818-824.

Strumpf NE. Improving care for the frail elderly: The challenge for nursing. Journal of Gerontological Nursing. 2000;26(7):36-44.

Teno JM, Fisher ES, Hamel MB, Coppola K, Dawson NV. Medical care inconsistent with patients' treatment goals: Association with 1-year Medicare resource use and survival. Journal of the American Geriatrics Society. 2002;50(3):496-500.

Teno JM, Casey VA, Welch LC, Edgeman-Levitan S. Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members. Journal of Pain & Symptom Management. 2001;22(3):738-751.

Teno JM, Weitzen S, Wetle T, Mor V. Persistent pain in nursing home residents. Journal of the American Medical Association. 2001;285(16):2081.

Teno JM. Putting patient and family voice back into measuring quality of care for the dying. Hospice Journal. 1999;14(3-4):167-176.

Teno JM, Byock I, Field MJ. Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness. Journal of Pain & Symptom Management. 1999;17(2):75-82.

Teno JM, Branco KJ, Mor V, Phillips CD, Hawes C, Morris J, Fries BE. Changes in advance care planning in nursing homes before and after the patient Self-Determination Act: Report of a 10-state survey. Journal of the American Geriatrics Society. 1997;45(8):939-944.

Tuch H. A "good death" nonetheless. Journal of Palliative Medicine. 2001;4(4):509-510.

Other targeted references:

Allegre A, Frank B, McIntosh E. Hospice in the nursing home—a valuable collaboration. Bioethics Forum. 1999;15(3):7-12.

Avis M, Jackson JG, Cox K, Miskella C. Evaluation of a project providing community palliative care support to nursing homes. Health & Social Care in the Community. 1999;7(1):32-38.

Beattie ERA. Long-term care for the elderly in Australia. Image: Journal of Nursing Scholarship. 1999;31(2):134-135.

Bodenheimer T. Long-term care for frail elderly people—The On Lok model. New England Journal of Medicine. 1999;341: 1324-1328.

Chichin ER, Burack OR, Olson E, Likourezos A (eds.). End-of-Life Ethics and the Nursing Assistant. New York: Springer Publishing Co., 2000.

de Barros ALB. Long-term care for elders in Brazil. Image: Journal of Nursing Scholarship. 1999;31(2):135-136.

Doka KJ. Living with Grief: Loss in Later Life. 2002. Washington, DC: Hospice Foundation of America, 2002.

Dowding C, Homer P. Teaching palliative care principles to UK nursing home care assistants. International Journal of Nursing Practice. 2000;6(3):160-163.

Froggatt, KA. Palliative care and nursing homes: Where next? Palliative Medicine. 2001;15(1):42-48.

Gillick MR. Lifelines: Living Longer, Growing Frail, Taking Heart. New York: W.W. Norton & Company, 2000.

Gillick MR. Choosing Medical Care in Old Age: What Kind, How Much, When to Stop. Cambridge, MA: Harvard University Press, 1994.

Goodwin JS. Geriatrics and the limits of modern medicine. New England Journal of Medicine. 1999;340(16):1283-1285.

Greenwood R. The PACE Model. Center for Medicare Education Issue Brief. 2001;2(10). Available to download or order in print form at www.medicareed.org/cmepublications.html.

Hanson LC, Henderson M. Care of the dying in long-term care settings. Clinics in Geriatric Medicine. 2000;16(2):225-237.

Innovations in End-of-Life Care. Special thematic issue: Only connect: Promoting meaning in the lives of patients with advanced dementia. 1999;1(4). www.edc.org/lastacts.

Innovations in End-of-Life Care. Special thematic issue: Promoting better pain management in long-term care facilities. 2001;3(1). www.edc.org/lastacts.

Katz JS, Sidell M, Komaromy C. Dying in long-term care facilities: Support needs of other residents, relatives, and staff. American Journal of Hospice & Palliative Care. 2001;18(5):321-326.

Lawhorne LW. End-of-life care in the nursing home—is a good death compatible with regulatory compliance? Bioethics Forum. 1999;15(3):23-28.

Lazer D, Schwartz-Cassell TL. Adding Value to Long-Term Care: An Administrator's Guide to Improving Staff Performance, Patient Experience, and Financial Health. San Francisco: Jossey-Bass, 2000.

Medicare Learning Network. End-of-life care enhances dignity and peace as life nears its end. cms.hhs.gov/medlearn/hosp_article.pdf (accessed 10 June 2002).

Miller SC, Mor VNT. The role of hospice care in the nursing home setting. Journal of Palliative Medicine. 2002;5(2):271-277.

Minnesota Department of Human Services, Long-Term Care Task Force. County Gaps Analysis: Long-Term Care Planning and Development. St. Paul, MN: Minnesota Department of Human Services, 2002. www.dhs.state.mn.us/agingint/ltctaskforce/gapsdefault.htm (accessed 10 June 2002).

Nagourney E. "Patterns: Comfort vs. longevity: Who decides?" New York Times, 12 March 2002.

Olson E, Chichin ER, Libow LS (eds.). Controversies in Ethics in Long-Term Care. New York: Springer Publishing Co., 1995.

Pain & Policy Studies Group. 2001 Annual Review of State Pain Policies: A Question of Balance. Madison, WI: University of Wisconsin Comprehensive Cancer Center, 2002. www.medsch.wisc.edu/painpolicy/publicat/01annrev/contents.htm (accessed 10 June 2002).

Schnelle JF. Can nursing homes use the MDS to improve quality? Journal of the American Geriatrics Society. 1997;45:1027-1028.

Smits HL, Furletti M, Vladeck BC. Palliative Care: An Opportunity for Medicine. New York: Center to Advance Palliative Care, 2002. For copies, call CAPC at (212) 201-2671 or email capc@mssm.edu.

Spann J, Christopher M. Promising educational initiatives for staff, regulators, and families. State Initiatives in End-of-Life Care. 1999;5:1-6. Available for download at www.lastacts.org/files/publications/SPC07LTC1.pdf.

Spann J, Christopher M. How regional long-term care ethics committees improve end-of-life care. State Initiatives in End-of-Life Care. 2000;6:1-6. Available for download at www.lastacts.org/files/publications/SPC08LTC2.pdf.