|
A. ORIGINAL TOOLS FROM RESPECTING CHOICES
Statement of Treatment Preferences
©2002 Gundersen Lutheran Medical Foundation. Published here with permission.
Assessing Your Advance Care Planning Program
©2000 Gundersen Lutheran Medical Foundation. Published here with permission.
Competencies for Facilitating Advance Care Planning Discussions
©2000 Gundersen Lutheran Medical Foundation. Published here with permission.
The Patient-Centered Advance Care Planning (PC-ACP) Interview
©2002 Gundersen Lutheran Medical Foundation. Published here with permission.
B. WEBSITES RELATED TO THIS ISSUE'S CONTRIBUTORS:
The Carolinas Center for Hospice and End-of-Life Care
www.carolinasendoflifecare.org
The Carolinas Center for Hospice and End of Life Care is a comprehensive resource to improve hospice, palliative, and end-of-life care, promoting recognition of the dying process and death as a natural part of life. The Center creates innovative partnerships with hospices, other health care providers, educational systems, and organizations at the state, regional, and national level.
Community-State Partnerships to Improve End-of-Life Care
www.midbio.org/npo-about.htm
A grant program funded by The Robert Wood Johnson Foundation, Community-State Partnerships to Improve End-of-Life Care, has awarded $11.25 million to 21 broad-based, multidisciplinary coalitions working to promote policy change and support for high-quality, comprehensive end-of-life care. Both the New Hampshire and North Carolina efforts described in this issue of Innovations are grantees of this national program office, housed at the Midwest Bioethics Center in Kansas City, Missouri.
Foundation for Healthy Communities
www.healthynh.com
The Foundation for Healthy Communities is a nonprofit corporation that exists to improve health and health care, and includes New Hampshire hospitals, health plans, clinicians, home care agencies and public policy leaders. Its end-of-life care initiative lists several advance care planning documents, including their newly revised Advance Care Planning Guide available at online at www.healthynh.com/downloads/endoflife.pdf.
Gundersen Lutheran Medical Center
Respecting Choices—Advance Care Planning
www.gundluth.org/eolprograms
Since 1993, Respecting Choices® has demonstrated success in implementing a community program that incorporates all of the area's major health care systems, develops effective partnerships with other professional groups and organizations, and is committed to consistent educational materials, training, and practices. The lessons learned and skills enhanced from this endeavor are being shared with other interested communities and organizations through this curriculum.
The components of Respecting Choices include: 1) a course to assist
individuals or a team from an organization or community to develop a successful
advance care planning program; 2) a course to train health professionals and
others to facilitate advance care planning; 3) a Respecting Choices Advance
Care Planning Facilitators' Manual; and 4) an assortment of community, patient,
and organizational resources to promote advance care planning.
C. OTHER RELATED WEBSITES:
Australian Palliative Aged Care (APAC)
www.apacproject.org
To date, no guidelines exist for implementation of palliative care in aged care facilities in Australia. As well, there are no specifications for how staff that work in aged care facilities should be trained to provide palliative care to these populations, nor is there a systematic approach to palliative care education for this workforce. APAC is working to address these deficits across the Australian continent.
Choices Bank
www.choicesbank.org
A new, free, electronic community repository for advance care planning documents, created by the Life's End Institute (formerly called the Missoula Demonstration Project) in Missoula, Montana, uses Internet technology to overcome some of the barriers that have stood in the way of wider use of advance directives. Currently available only for western Montanans, one of the project's goals is to create an exportable model of a community-based advance directive depository.
Five Wishes
www.agingwithdignity.org/5wishes.html
Five Wishes is a document that helps people express how they want to be treated if they become seriously ill and unable to speak for themselves. It is unique among all other living will and health agent forms because it looks to all of a person's needs: medical, personal, emotional, and spiritual. Five Wishes also encourages discussing your wishes with your family and physician.
Last Acts fact sheet
Thinking Ahead: Advance Planning for End-of-Life Care
www.lastacts.org/files/misc/THINKINGAHEAD.pdf
Last Acts encourages readers to download and share its fact sheets and tip sheets with patients and family members. Information on other fact sheets can be found on our general links page.
Life's End Institute: Missoula Demonstration Project
www.missoulademonstration.org/
Life's End Institute is an innovative community project in the state of Montana that is working to improve how people experience dying, caregiving, death, and bereavement. The focus is on community-based research and public engagement to foster social change. Nationally, the project has helped more than 200 communities nationwide in their own efforts to improve end-of-life care.
Midwest Bioethics Center
Caring Conversations—Making Your Wishes Known for End-of-Life Care
www.midbio.org/mbc-cc.htm
Caring ConversationsSM is a consumer education initiative that helps individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions. The Caring Conversations workbook includes a questionnaire to help people have "caring conversations," an advance directive document, and a list of the most frequently asked questions about advance directives. You can download the workbook at www.midbio.org/workbook.pdf.
A Guide to Advance Care Planning: Ontario Seniors' Secretariat
www.gov.on.ca/citizenship/seniors/english/advancecare.htm
This Guide to Advance Care Planning has been developed by the government of Ontario, Canada, as part of Ontario's Strategy for Alzheimer Disease and Related Dementias. It encourages people to discuss their care wishes with their families and those who will make decisions for them in the future in the event they are unable to make decisions themselves. Step-by-step, it explains how to begin the process of advance care planning and discusses options, as well as provide answers to some frequently asked questions.
Partnership for Caring: America's Voice for the Dying
www.partnershipforcaring.org
Partnership for Caring is a national nonprofit organization devoted to raising consumer expectations and demand for excellent end-of-life care. The site offers resources for talking about end-of-life choices and provides state-specific advance directive documents.
Physician Orders for Life-Sustaining Treatment (POLST)
www.ohsu.edu/ethics/polst.htm
Physician Orders for Life-Sustaining Treatment (POLST) is a one-page, two-sided document designed to help health care providers honor the end-of-life treatment desires of their patients in the state of Oregon. The document is a physician order form that follows patient wishes and treatment intentions and thereby enhances the appropriateness and quality of patient care. It is not intended to be completed by the patient or the patient's family. It is not an advance directive, which in Oregon must follow statutory wording.
Supportive Care of the Dying
Person to Person: Discovering Patient Wishes in Planning for End of Life - A Tool for Physicians
www.careofdying.org/Resources/PHYSICN.pdf
The tools included in this facilitator guide address the special challenges that physicians face in helping their patients as they approach the end of their lives. The video and guide are specifically designed to help physicians teach physicians these important skills. (To order a hard copy of the booklet and the companion video tape contact clieberman@providence.org.)
Supportive Care of the Dying also publishes Supportive Voice, a quarterly newsletter that allows readers to share in the experiences and challenges of members and professional colleagues in order to help improve end-of-life care. Their homepage is www.careofdying.org.
 Be sure to visit the inaugural issue of Innovations in End-of-Life Care, entitled "Communication, Truth-telling and Advance Care Planning," and its Resources and Tools page at www2.edc.org/lastacts/archives/archivesJan99/resources.asp.
| 
