Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

The following is a list of resources available related to the current issue.

Blackhall LJ, Murphy ST, Frank G, Michel V, Azen S. Ethnicity and attitudes toward patient autonomy. Journal of the American Medical Association. 1995;274(10):820-825.

Elwyn TS, Fetters MD, Gorenflo DW, Tsuda T. Cancer Disclosure in Japan: Historical comparisons, current practices. Social Science and Medicine. 1998;46:1151-1163.

Farber S, Anderson W, Branmden C, Isenhower P, Lanier K, O'Reilly L. Improving cancer pain management through a system wide commitment. Journal of Palliative Medicine. 1998;1(4):377-385.

Farber S, Herman-Bertsch J. Using standardized patients to teach palliative care principles to primary care residents. Journal of Cancer Education. 1998; Supplement to 12(3):20.

Fetters MD. The family in medical decision making: Japanese perspectives. Journal of Clinical Ethics. 1998;9:132-146.

Frank G., Blackhall L., Michel V., Murphy S., Azen S., Park K. A discourse of relationships in bioethics: patient autonomy and end of life decision making among elderly Korean Americans. Medical Anthropology Quarterly. 1998; 12(4):403-423.

Other selected references on cultural diversity in end-of-life decision making
(See also the Read More section of the previous issue, vol. 1, number 1.)

Asai A. Should physicians tell patients the truth? Western Journal of Medicine. 1995;163:36-39.

Asai A, Fukuhara S, Lo B. Attitudes of Japanese and Japanese-American physicians towards life-sustaining treatment. The Lancet. 1995;346:356-359.

Asai A, Kishino M, Fukui T, et al. A report from Japan. Choices of Japanese patients in the face of disagreement. Bioethics. 1998;12:162-172.

Carrese JA, Rhodes LA. Western bioethics on the Navajo reservation. Journal of the American Medical Association. 1995;274(10):826-829.

Dula A. African American suspicion of the healthcare system is justified: What do we do about it? Cambridge Quarterly of Healthcare Ethics. 1994;3:347-357.

Fadiman A. The spirit catches you and you fall down: A Hmong child, her American doctors, and the collision of two cultures. New York: Farrar, Straus, and Giroux, 1997.

Gostin LO. Informed consent, cultural sensitivity and respect for persons. Journal of the American Medical Association. 1995;274(10):844-845.

Hall P, et al. Palliative care: how can we meet the needs of our multicultrual communities? Journal of Palliative Care. 1998 Summer;14(2):46-9.

Howard Kim, "Managing Diversity," American Medical News (Chicago), 25 January 1999, pp. 19-20,22.

Klessig, J. The effect of values and culture on life-support decisions. Western Journal of Medicine. 1992 September;157:316-322.

Rachel Kreier, "Crossing the Cultural Divide," American Medical News (Chicago), 25 January 1999, pp. 10-12.

McDonald-Scott P, Machizawa S, Satoh H. Diagnostic disclosure: a tale in two cultures. Psychological Medicine. 1992;22:147-157.

Accommodating Religious and Cultural Diversity. Tier III Essay and Annotated Bibliography. In: Decisions Near the End of Life Faculty Guide. Decisions Near the End of Life National Coordinating Center at Education Development Center, Newton, MA. 1997.

Vawter DE, et al. Hospice care for terminally ill Hmong patients. A good cultural fit? Minnesota Medicine. 1997;80(11):42-44.

Other selected references on the role of families

DuLac JD, Lynn J. Patient preferences in medical decision making: A collaborative approach. Quality of Life-A Nursing Challenge, 1994;3:9-13.

Goetschius SK. Families and end-of-life care. How do we meet their needs? Journal of Gerontology Nursing. 1997;23(3):43-49.

Nelson, HL and Nelson, JL. The Patient in the Family: An Ethics of Medicine and Families. New York: Routledge, 1995.

Nelson, JL. Taking families seriously. Hastings Center Report. 1992;22(4):6-12.

Ramirez A, Addington-Hall J, Richards M. ABC of palliative care: The carers. British Medical Journal. 1998;316:208-211. http://www.bmj.com/cgi/content/full/316/7126/208

Yates, P and Stetz, KM. Families' awareness of and response to dying. Oncology Nursing Forum. 1999; 26(1):113-119.