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Table 8:   CLINICAL ISSUES AND RESPONSIBILITIES BY DISCIPLINE AS IDENTIFIED BY THE HIV PALLIATIVE CARE TEAM


Medical

  • Symptom assessment, diagnosis of reversible causes of pain/symptoms
  • Assessment of prognosis
  • Exploration of possibilities for disease-specific vs. palliative interventions
  • Coordination of HIV and palliative care treatment plans
  • Review of potential drug interactions between HIV and palliative care medications

Nursing

  • Advance care planning discussions with patients and families
  • Address treatment decisions in the context of terminal illness affecting young families
  • Education of patients, families, providers about pain management
  • Addressing and anticipating concerns about addiction
  • Involvement with home care, anticipation and treatment of common problems as disease progresses
  • Work with patients about adherence with HIV-specific and palliative therapies

Social Work

  • Support and counseling for patients, families, significant others, concerning isolation, stigma, confidentiality, and multiple losses
  • Anticipatory guidance about stressors due to chronic and uncertain trajectory of illness ("roller coaster")
  • Preparing for death but hoping for "cure"
  • Addressing co-existing mental health and substance use-related problems
  • Exploring patients' feelings and frustrations about dying in the era of HAART
  • Identifying concrete service needs for vulnerable, marginalized patient populations

Psychiatry

  • Differentiating depression and other disorders from neuropsychiatric manifestations of HIV disease and chronic substance use
  • Exploring refusal/non-adherence with HAART as an informed choice vs. sign of psychopathology
  • Determining psychopharmacologic options/strategies in patients with substance use histories
  • Addressing family impact of life-threatening illness affecting young adults and children
  • Anticipating drug interactions between HIV and psychiatric medications

Medical Ethics

  • Assisting in conflict resolution between biological and chosen families regarding care decisions for dying patients
  • Advocating for adequate pain management in settings where substance use may be a barrier to treatment
  • Addressing concerns about palliative care as less-than-standard care in historically disenfranchised populations mistrustful of the health care system
  • Balancing confidentiality, autonomy, and "need to know" in the setting of a highly stigmatized and transmissible infection
  • Ensuring that all HIV-infected patients have adequate access to care

Pastoral Care

  • Assisting patients with reconciliation with family and religious/spiritual traditions
  • Serving as liaison between patients/families/providers and community-based religious/spiritual resources
  • Addressing non-acceptance of patients' sexual and drug use behaviors within some faith-based organizations
  • Providing ministry of comfort and spiritual support for patients alienated from former religious/ spiritual traditions
  • Assisting with funeral rites and arrangements, bereavement services for families

Outreach

  • Engaging and following hard-to-reach patients in the community
  • Establishing trust and connection with active substance users, homeless patients, and those in other marginalized populations
  • Accompanying and advocating for patients within the medical and social service systems
  • Making home visits and providing concrete/emotional support for patients and families

[Citation: Selwyn PA, Rivard M, Kappell D, Goeren B, LaFosse H, Schwartz C, Caraballo R, Luciano D, Post LF. Palliative care for AIDS at a large urban teaching hospital: Program description and preliminary outcomes. Innovations in End-of-Life Care. 2002;4(3), www.edc.org/lastacts/]

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