Table 8: CLINICAL ISSUES AND RESPONSIBILITIES BY DISCIPLINE AS IDENTIFIED BY THE HIV PALLIATIVE CARE TEAM
Medical
- Symptom assessment, diagnosis of reversible causes of pain/symptoms
- Assessment of prognosis
- Exploration of possibilities for disease-specific vs. palliative interventions
- Coordination of HIV and palliative care treatment plans
- Review of potential drug interactions between HIV and palliative care medications
Nursing
- Advance care planning discussions with patients and families
- Address treatment decisions in the context of terminal illness affecting young families
- Education of patients, families, providers about pain management
- Addressing and anticipating concerns about addiction
- Involvement with home care, anticipation and treatment of common problems as disease progresses
- Work with patients about adherence with HIV-specific and palliative therapies
Social Work
- Support and counseling for patients, families, significant others, concerning isolation, stigma, confidentiality, and multiple losses
- Anticipatory guidance about stressors due to chronic and uncertain trajectory of illness ("roller coaster")
- Preparing for death but hoping for "cure"
- Addressing co-existing mental health and substance use-related problems
- Exploring patients' feelings and frustrations about dying in the era of HAART
- Identifying concrete service needs for vulnerable, marginalized patient populations
Psychiatry
- Differentiating depression and other disorders from neuropsychiatric manifestations of HIV disease and chronic substance use
- Exploring refusal/non-adherence with HAART as an informed choice vs. sign of psychopathology
- Determining psychopharmacologic options/strategies in patients with substance use histories
- Addressing family impact of life-threatening illness affecting young adults and children
- Anticipating drug interactions between HIV and psychiatric medications
Medical Ethics
- Assisting in conflict resolution between biological and chosen families regarding care decisions for dying patients
- Advocating for adequate pain management in settings where substance use may be a barrier to treatment
- Addressing concerns about palliative care as less-than-standard care in historically disenfranchised populations mistrustful of the health care system
- Balancing confidentiality, autonomy, and "need to know" in the setting of a highly stigmatized and transmissible infection
- Ensuring that all HIV-infected patients have adequate access to care
Pastoral Care
- Assisting patients with reconciliation with family and religious/spiritual traditions
- Serving as liaison between patients/families/providers and community-based religious/spiritual resources
- Addressing non-acceptance of patients' sexual and drug use behaviors within some faith-based organizations
- Providing ministry of comfort and spiritual support for patients alienated from former religious/ spiritual traditions
- Assisting with funeral rites and arrangements, bereavement services for families
Outreach
- Engaging and following hard-to-reach patients in the community
- Establishing trust and connection with active substance users, homeless patients, and those in other marginalized populations
- Accompanying and advocating for patients within the medical and social service systems
- Making home visits and providing concrete/emotional support for patients and families
[Citation: Selwyn PA, Rivard M, Kappell D, Goeren B, LaFosse H, Schwartz C, Caraballo R, Luciano D, Post LF. Palliative care for AIDS at a large urban teaching hospital: Program description and preliminary outcomes. Innovations in End-of-Life Care. 2002;4(3), www.edc.org/lastacts/]
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