Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Selected articles by contributors to this issue:

Ashman JJ, Marconi KM, McKinney MM, O'Neill JF. Who receives Ryan White CARE Act services? A demographic comparison of CARE act clients and the general AIDS population. AIDS Patient Care and STDs. 2000;14(10):561-565.

Cherin DA, Huba GJ, Steinberg J, Reis P, Melchior LA, Marconi K, Panter AT. Satisfaction with Services in Innovative Managed Care Programs for Groups of Traditionally Underserved Individuals with HIV/AIDS: Empirical Models. Co-published simultaneously in Home Health Care Services Quarterly, Vol. 19, No. 1/2, 2001, 103-125; and: The Next Generation of AIDS Patients: Service Needs and Vulnerabilities, GJ Huba et al., eds. Binghamton, NY: Haworth Press, Inc., 2001, 103-125.

Goulet JL, Molde S, Constantino J, Gaughan D, Selwyn PA. Psychiatric comorbidity and the long-term care of people with AIDS. Journal of Urban Health. 2000;77(2):213-221.

Greenberg B, McCorkle R, Blahov D, Selwyn PA. Palliative care for HIV disease in the era of highly active antiretroviral therapy. Journal of Urban Health. 2000;77(2):150-165.

HRSA HIV/AIDS Bureau, SPNS Program and Department of Housing and Urban Development, HOPWA Program. Lessons Learned. Rockville, MD: Health Resources and Services Administration, 2001.

Higginson IJ, O'Neill J. HIV/AIDS in the age of palliative care. Foreword. Journal of the Royal Society of Medicine. 2001;94(9):429.

Higginson IJ, O'Neill J. Palliative care in the age of HIV/AIDS. Conclusions from the meeting. Journal of the Royal Society of Medicine. 2001;94(9):496-498.

Huba GJ, Melchior LA, Smereck GAD, Brown VB, Jean-Louis E, German VF, Gallagher T, McDonald SS, Stanton A, Hughes C, Marconi K, Panter AT. Perceived barriers to Receiving HIV Services in Groups of Traditionally Underserved Individuals: Empirical Models. Co-published simultaneously in Home Health Care Services Quarterly, Vol. 19, No. 1/2, 2001, 53-75; and: The Next Generation of AIDS Patients: Service Needs and Vulnerabilities, GJ Huba et al., eds. Binghamton, NY: Haworth Press, 2001, 53-75.

Jacobsen Ashman J, Marconi JM, McKinney MM, O'Neill JF. Who received Ryan White CARE Act services? A demographic comparison of CARE Act clients and the general AIDS population. AIDS Patient Care and STDs . 2000;14(10):561-565.

Larson TA, Mundy LM, Melchior LA, Melchior AT, Brown VB, Chase P, Cherin DA, Gallagher T, German VF, Jean-Louis E, Kaplan J, McDonald SS, Meredith KL, Reis P, Richardson-Nassif K, Rohweder C, Smereck GAD, Stanton A, Steinberg J, Marconi K, Huba GJ. Finding the Underserved: Directions for HIV Care in the Future. Co-published simultaneously in Home Health Care Services Quarterly, Vol. 19, No. 1/2, 2001, 7-27; and: The Next Generation of AIDS Patients: Service Needs and Vulnerabilities, GJ Huba et al., eds. Binghamton, NY: Haworth Press, 2001, 7-27.

Merriman A. Hospice Uganda: 1993-1998. Journal of Palliative Care. 1999;15(1):50-52.

Merriman A. In the darkness of the shadow of death: A ray of hope: The story of Hospice Africa. Journal of Palliative Care. 1993;9(3):23-24.

Merriman A. Teaching palliative medicine in sub-Saharan Africa: A challenge in Uganda. Cancer Pain Release. 1997;10(3):4. Available at www.whocancerpain.wisc.edu/eng/10_3/10_3.html.

Merriman A. Pain and Symptom Control in Uganda and Other African Countries for Patients with Cancer and AIDS. 3rd edition. Kisube-Entebbe: Marianum Press, Ltd., 2002. (To order)

Niemcryk SJ, Bedros A, Marconi KM, O'Neill JF. Consistency in maintaining contact with HIV-related service providers: An analysis of the AIDS Cost and Services Utilization Study (ACSUS). Journal of Community Health. 1998;23(2):137-152.

O'Neill JF. Paying for HIV/AIDS care at the turn of the century. American Journal of Managed Care. 1999;5(11):1442.

O'Neill J, Marconi K. Access to palliative care in the USA: Why emphasize vulnerable populations? Journal of the Royal Society of Medicine. 2001;94(9):452-454.

O'Neill JF, Marconi K, Surapruik A, Blum N. Improving HIV/AIDS services through palliative care: A HRSA perspective. Health Resources and Services Administration. Journal of Urban Health. 2000;77(2):244-254.

Richardson-Nassif K, Meredith KL, Larson TA, Mundy LM, Melchior LA. Integrating and Utilizing Evaluation in Comprehensive HIV Care Programs. Co-published simultaneously in Drugs & Society, Vol. 16, No. 1/2, 2000, 75-86; and: Evaluating HIV/AIDS Treatment Programs: Innovative Methods and Findings, GJ Huba et al., eds. Binghamton, NY: Haworth Press, 2000, 75-86.

Selwyn PA. Surviving the Fall: The Personal Journal of an AIDS Doctor. New Haven: Yale University Press, 1998.

Selwyn PA, Goulet JL, Molde S, Constantino J, Fennie KP, Wetherill P, Gaughan DM, Brett-Smith H, Kennedy C. HIV as a chronic disease: Implications for long-term care at an AIDS-dedicated skilled nursing facility. Journal of Urban Health. 2000;77(2):187-203.

Selwyn PA, Arnold R. From fate to tragedy: The changing meanings of life, death, and AIDS. Annals of Internal Medicine. 1998;129(11):899-902.

Thompson AS, Blankenship KM, Selwyn PA, Khoshnood K, Lopez M, Balcos K, Altice FL. Evaluation of an innovative program to address the health and social service needs of drug-using women with or at risk for HIV infection. Journal of Community Health. 1998;23(6):419-440.

Other targeted references:

Aronstein DM, Thompson BJ (eds.). HIV and Social Work: A Practitioner's Guide. Binghamton, NY: Haworth Press, 1998.

Axios International. A Program on Orphans and Vulnerable Children in AIDS affected areas, in Tanzania. Dublin: Axios International, 2001.

Barnard D. International policy report: Introduction. Journal of Palliative Medicine. 2002;5(1):159.

Bennett I, Duke J. Research note: Decision-making processes, ethical dilemmas and models of care in HIV/AIDS health care provision. Sociology of Health & Illness. 1995;17(1):109-119.

Corliss IB, Nicholas PK. Long-term continuum of care for people living with HIV/AIDS. Journal of Urban Health. 2000;77(2):176-186.

Cox C. Hospice care for injection drug using AIDS patients. Hospice Journal. 1999;14(1):13-24.

Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Understanding physicians' skills at providing end-of-life care perspective s of patients, families, and health care workers. Journal of General Internal Medicine. 2001;16(1):41-49.

Curtis JR, Patrick DL, Caldwell ES, Collier AC. Why don't patients and physicians talk about end-of-life care? Barriers to communication for patients with Acquired Immunodeficiency Syndrome and their primary care clinicians. Archives of Internal Medicine. 2000;160:1690-1696.

Curtis JR, Patrick DL, Caldwell E, Greenlee H, Collier AC. The quality of patient-doctor communication about end-of-life care: A study of patients with advanced AIDS and their primary care clinicians. AIDS. 1999;13(9):1123-1131.

Domrose C. Changing face of AIDS. NurseWeek. September 6, 2001. This article can be accessed online at www.nurseweek.com/news/features/01-09/aids.html.

Dukes CS, Turpin BA, Atwood JR. Hospice education about people with AIDS as terminally ill patients: Coping with a new epidemic of death. American Journal of Hospice & Palliative Care. 1995;12(1):25-31.

Easterbrook P, Meadway J. The changing epidemiology of HIV infection: New challenges for HIV palliative care. Journal of the Royal Society of Medicine. 2001;94(9):442-448.

Essex M, Mboup S, Kanki PJ, Marlink RG, Tlou SD. Aids in Africa, 2nd ed. New York: Kluwer Academic/Plenum Publishers, 2002.

Foley FJ, Flannery J, Graydon D, Flintoft G, Cook D. AIDS palliative care—challenging the palliative paradigm. Journal of Palliative Care. 1995;11(2):19-22.

Gilkes CF. HIV care in non-industrialised countries. British Medical Bulletin. 2001;58:171-186.

Good MJ, Mwaikambo E, Amayo E, Machoki JM. Clinical realities and moral dilemmas: Contrasting perspectives from academic medicine in Kenya, Tanzania, and America. Daedalus. 1999;128(4):167-196.

Jagwe JGM. The introduction of palliative care in Uganda. Journal of Palliative Medicine. 2002;5(1):160-163.

Kirton CA, Talotta D, Zwolski K. Handbook of HIV/AIDS Nursing. St. Louis, MO: Mosby, 2001.

Matheny SC. Clinical dilemmas in palliative care for HIV infection. Journal of the Royal Society of Medicine. 2001;94(9):496-498.

Mouton C, Teno JM, Mor V, Piette J. Communication of preferences for care among human immunodeficiency virus-infected patients. Barriers to informed decisions? Archives of Family Medicine. 1997;6(4):342-347.

Newshan G, Sherman DW. Palliative care: Pain and symptom management in persons with HIV/AIDS. The Nursing Clinics of North America. 1999;34(1):131-145.

Nicholson J, Turner N. Can the development of palliative care services meet the needs of people with HIV? Journal of Palliative Care. 2000;16(2):37-43.

O'Hara MJ, Czarniecki L. Pain management in children with HIV/AIDS. Gay Men's Health Crisis Treatment Issues. 1997;11(7-8):38:40.

Oleske JM, Czarniecki L. Continuum of palliative care: Lessons from caring for children infected with HIV-1. Lancet. 1999;354(9186):1287-1291.

Parker Martin J. End of Life Care in HIV/AIDS. In HIV InSite Knowledge Base, l Peiperl, P Volberding (eds.). Online textbook of HIV disease from the University of California San Francisco and San Francisco General Hospital. Available at http://hivinsite.ucsf.edu/InSite.jsp?page=kb-03&doc=kb-03-03-05.

Ramsay S. Raising the profile of palliative care for Africa. Lancet. 2001;358:734.

Stajduhar KI, Davies B. Palliative care at home: Reflections on HIV/AIDS family caregiving experiences. Journal of Palliative Care. 1998;14(2):14-22.

Stein GL, Bonuck KA. Attitudes on end-of-life care and advance care planning in the lesbian and gay community. Journal of Palliative Medicine. 2001;4(2):173-190.

UNAIDS. AIDS: Palliative Care. Technical Update. Geneva: UNAIDS, 2000. Available at www.unaids.org/publications/documents/care/general/JC-PalliCare-TU-E.pdf.

van der Walt H, Mailula S, de la Porte A. Stigma and HIV/AIDS care. Perspectives from South Africa. IAPAC Monthly. 2001;7(11):315-318.

Verghese A. My Own Country: A Doctor's Story of a Town and Its People in the Age of AIDS. New York: Simon & Schuster, 1994.

von Gunten CF, Martinez J, Neely KJ, von Roenn JH. AIDS and palliative medicine: medical treatment issues. Journal of Palliative Care. 1995;11(2):5-9.

Wood CGA, Whittet S, Bradbeer CS. ABC of palliative care: HIV infection and AIDS. British Medical Journal. 1997;315:1433-1436. Available at http://bmj.com/cgi/content/full/315/7120/1433.

Woodruff R. Palliative Medicine: Symptomatic and Supportive Care for Patients with Advanced Cancer and AIDS, 3d ed. Melbourne: Oxford University Press, 1999.