Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

A. WEBSITES RELATED TO THIS ISSUE'S CONTRIBUTORS:

HIV/AIDS Bureau (HAB), Health Resources and Services Administration (HRSA)
http://hab.hrsa.gov/
The HIV/AIDS Bureau (HAB) of the Health Resources and Services Administration (HRSA) is the largest single source (next to the Medicaid and Medicare programs) of Federal funding for HIV/AIDS care for low-income, un- and underinsured individuals. It was formed in August 1997 to consolidate all programs funded under the Ryan White Comprehensive AIDS Resources Emergency (CARE) Act. The CARE Act was signed into law in 1990 to improve the quality and availability of care for people with HIV/AIDS and their families.

Special Projects of National Significance (SPNS) palliative care grant recipients, Health Resources and Services Administration (HRSA)
http://hab.hrsa.gov/Spns/SPNSAbstracts/SPNS-palliative.htm
SPNS is the research and demonstration program of the Ryan White CARE Act, which funds HIV care for underserved populations within the United States. These six palliative care projects were funded in response to the Institute of Medicine’s (IOM) report, Approaching Death, to implement innovative models of palliative care.

Hospice Africa
http://hospice-africa.merseyside.org/
Hospice Africa was founded in 1993 to promote the initiation of hospice in those countries where patients have not yet had the assistance of palliative medicine. Hospice Uganda is the "model hospice" for Hospice Africa. Directed by Dr. Anne Merriman, Hospice Uganda looks after terminally ill cancer patients by bringing the modern methods of pain and symptom management, counseling, and spiritual support of the patient and family. It is estimated that nearly 75% of Hospice Africa’s cancer patients also have AIDS. A fact sheet provides further details about Hospice Uganda. To assist Hospice Africa, click here.

B. OTHER RELEVANT WEBSITES:

Action for Orphans
www.orphans.fxb.org
Association François-Xavier Bagnoud is involved in more than 21 humanitarian action projects in 17 countries and has made children affected and orphaned by AIDS its special focus. The Action for Orphans website contains reports on projects in Africa, a 28-page report on children orphaned by AIDS, stories from the field, a video clip of a 12-year-old's crusade to end the discrimination endured by HIV/AIDS sufferers, and more.

ÆGIS: AIDS Education Global Information System
www.aegis.com/
ÆGIS is the world's largest HIV/AIDS knowledgebase in the world. Information is organized by key topics, fact sheets, news services, a law library, publications, reference tools, ways to connect with others, and includes an extensive and indexed list of linked websites.

American Foundation for AIDS Research (amfAR)
www.amfar.org
The American Foundation for AIDS Research (amfAR) is the nation's leading nonprofit organization dedicated to the support of HIV/AIDS research, AIDS prevention, treatment education, and the advocacy of sound AIDS-related public policy.

Association of Nurses in AIDS Care (ANAC)
www.anacnet.org
Founded in 1987 to address the specific needs of nurses working in HIV/AIDS, the Association of Nurses in AIDS Care has rapidly become a leader in the response to HIV disease and AIDS. With a highly regarded peer-reviewed journal, and an annual conference featuring national and international speakers and educational and scientific sessions on the latest developments in HIV nursing, ANAC is meeting the needs of nurses in HIV/AIDS care, research, prevention, and policy.

Centers for Disease Control, Global AIDS Program (GAP)
www.cdc.gov/nchstp/od/gap/default.htm
The Global AIDS Program exists to help prevent HIV infection, improve care and support and build capacity to address the global HIV/AIDS pandemic. GAP provides financial and technical assistance through partnerships with communities, governments, and national and international entities working in resource-constrained countries. Read about GAP's Palliative Care Technical Strategy.

Enhancing Care Initiative (ECI)
www.eci.harvard.edu/
The Enhancing Care Initiative is a multidisciplinary, multinational program that aims to enhance the care of people living with HIV/AIDS in resource-scarce countries. Based on the beliefs that concrete, practical improvements in care for people with HIV can and must be developed—and that these improvements will be most effective when developed and implemented by local experts who understand the challenges and possibilities intrinsic to their regions, the heart of ECI lies in its AIDS Care Teams that are formed by, composed of, and led by people from the countries involved. ECI is coordinated by the Harvard AIDS Institute in collaboration with the François-Xavier Bagnoud Center for Health and Human Rights.

Foundation for Hospices in sub-Saharan Africa (FHSSA)
www.fhssa.org
Started in 1999 as a nonprofit foundation, FHSSA has a national board and a growing network of partnered entities seeking to develop resources for African providers. They actively support hospices or similar groups in South Africa, Zimbabwe, and Tanzania and have established relationships with other providers in Namibia, Malawi, Zambia, Swaziland, Kenya, and Uganda. The FHSSA homepage will soon be replaced with a full website. To subscribe to African Hospice Foundation News, please send a request to newsletter@fhssa.org. Please include "subscribe" in the subject line and your e-mail address in the body.

Global AIDS Interfaith Alliance (GAIA)
www.thegaia.org
The Global AIDS Interfaith Alliance was founded in June 2000 to stop the transmission of the HIV virus from mothers to infants in sub-Saharan Africa. It focuses on infrastructure development, training of prevention educators and personnel to conduct HIV testing and counseling, and for modifying values, structures, and practices that predispose women and girls to higher infection rates than men, stigmatization of ill persons, and public denial.

Global Health Council
www.globalhealth.org
The Global Health Council is the largest membership alliance dedicated to improving the quality of and access to health care worldwide. Its mission is to promote better health around the world by assisting all who work for improvement and equity in global health to secure the information and resources they need to work effectively. The site includes a Key Issues Guide on HIV/AIDS http://www.globalhealth.org/issues/hivaids.html as well as Notes from the Field.

HIV/AIDS Resource Center, Journal of the American Medical Association (JAMA)
www.ama-assn.org/special/hiv/hivhome.htm
JAMA editors and staff have designed a resource for physicians and other health professionals who are looking for in-depth and up-to-date information on AIDS. Includes reports, full text articles from JAMA, and treatment guidelines.

HIV InSite
http://hivinsite.ucsf.edu/InSite.jsp
HIV InSite, a project of the University of California San Francisco (UCSF) is a source of in-depth HIV/AIDS information and knowledge. The site is an extensive collection of original material, including the HIV InSite Knowledge Base, a comprehensive, online textbook of HIV disease from UCSF and the San Francisco General Hospital. Click here for a detailed table of contents.

International AIDS Economics Network (IAEN)
www.iaen.org/
The International AIDS Economic Network (IAEN) provides data, tools, and analysis on the economics of HIV/AIDS prevention and treatment in developing countries, for compassionate, cost-effective responses to the global epidemic.

International Association of Physicians in AIDS Care (IAPAC)
www.iapac.org/
The IAPAC website provides HIV clinical management updates and public health policy information. The site includes conference information, IAPAC publications, advocacy information, and membership details.

Living with Dying, Dying at Home: An AIDS Care Team Resource Manual
www.hc-sc.gc.ca/hppb/healthcare/pubs/selfcare/12en.htm
This is a resource manual for persons living with AIDS who wish to die at home and for their home care teams. It is a 214-page binder containing useful information on practical issues about AIDS and dying at home, as well as a notebook-style tool to facilitate record keeping and communication between members of the care team. Developed by the AIDS Committee of Toronto (ACT) and Project Access, with support from the HIV/AIDS Care, Treatment and Support Program of Health Canada, Living with Dying, Dying at Home is available free of charge in French and English through the National AIDS Clearinghouse (tel: 613-725-3434).

The AIDS Support Organisation (TASO)
www.taso.co.ug/
Based in Uganda, The AIDS Support Organisation (TASO) was founded in 1987 to contribute to a process of restoring hope and improving the quality of life of persons and communities affected by HIV infection and disease.

Uganda AIDS Commission (UAC)
www.aidsuganda.org/
Recognizing that HIV/AIDS has causes and consequences beyond the health sector, the Government of Uganda developed and adopted the "Multi-sectoral Approach to the Control of AIDS" (MACA). The MACA policy and strategy stipulates that "all Ugandans have an individual and collective responsibility to be actively involved in HIV/AIDS prevention and control activities, in a coordinated manner, at the various administrative and political levels up to the grassroots." The Uganda AIDS Commission (UAC) was established by Statute of Parliament in 1992 and placed under the Office of the President to coordinate the multi-sectoral efforts.

UNAIDS: The Joint UN Programme on HIV/AIDS
www.unaids.org/
As the main advocate for global action on HIV/AIDS, UNAIDS leads, strengthens, and supports an expanded response aimed at preventing the transmission of HIV, providing care and support, reducing the vulnerability of individuals and communities to HIV/AIDS, and alleviating the impact of the epidemic.

World Health Organisation, profile on Uganda
www.whoafr.org/uganda/index.html
The World Health Organisation Regional Office for Africa has compiled a country health profile on Uganda that includes an overview, statistics on the burden of disease, information on the HIV/AIDS situation, and background on the country's health systems.