Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Selected articles by contributors to this issue:

Gillick M. Lifelines: Living Longer, Growing Frail, Taking Heart. New York: W.W. Norton & Co., 2002.

Gillick M. Tangled Minds: Understanding Alzheimer's Disease and Other Dementias. New York: Plume, 1999.

Gillick M. Choosing Medical Care in Old Age: What Kind, How Much, When to Stop. Cambridge, MA: Harvard University Press, 1996.

Gillick M, Berkman S, Cullen L. A patient-centered approach to advance medical planning in the nursing home. Journal of the American Geriatrics Society. 1999;47(2):227-230.

The SUPPORT study:

The SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients. The Study to Understand Outcomes and Risks of Treatments (SUPPORT). Journal of the American Medical Association. 1995;274:1591-1598.

Dying Well in the Hospital: The Lessons of SUPPORT. Hastings Center Report. Special Supplement. 1995;25(6):S1-S36.

Findings from SUPPORT and HELP. Supplement to Journal of the American Geriatrics Society. 2000;48(5):S1-S233.

Solomon MZ. Research to Improve End-of-Life Care in the United States: Toward a More Behavioral and Ecological Paradigm. In Issues in Palliative Care Research, R Portenoy, E Bruera (eds.). New York: Oxford University Press, 2003, 275-291.

Other targeted references:

Advance Care Planning: Preferences for Care at the End of Life. Research in Action, Issue 12. AHRQ Publication Number 03-0018, March 2003. Agency for Healthcare Research and Quality, Rockville, MD. www.ahrq.gov/research/endliferia/endria.htm.

Baker ME. Economic, political and ethnic influences on end-of-life decision-making: A decade in review. Journal of Health & Social Policy. 2002;14(3):27-39.

Barnard D. Advance care planning is not about "getting it right." Journal of Palliative Medicine. 2002;5(4):475-481.

Barnes LL, Plotnikoff GA. Fadiman and beyond -- the dangers of extrapolation. Bioethics Forum. 2001;17(1):32-40.

Basile CM. Patient and community education in advance directives. Critical Care Nursing Clinics of North America. 2002;14(2):215-217.

Berry SR, Singer PA. The cancer specific advance directive. Cancer. 1998;82(8):1570-1577.

Blank K. Respectful decisions at the end of life. American Journal of Geriatric Psychiatry. 2002;10(4):362-364.

Bradley EH, Blechner BB, Walker LC, Wetle TT. Institutional efforts to promote advance care planning in nursing homes: Challenges and opportunities. Journal of Law, Medicine & Ethics. 1997;25(2/3):150-159.

Briggs L, Colvin E. The nurse's role in end-of-life decision-making for patients and families. Geriatric Nursing. 2002;23(6):302-310.

State Initiatives in End-of-Life Care. Focus: Advance Care Planning: Part 1. Approaches for Patients from Marginalized Groups. 2001;12. Available for download at www.lastacts.org/files/publications/unbefriended-final.pdf.

State Initiatives in End-of-Life Care. Focus: Advance Care Planning: Part 2. Guardianship: A Neglected Piece of the Surrogate Decisionmaking Picture. 2002;13. Available for download at www.lastacts.org/files/publications/acp2guardianship-final.pdf.

Candib LM. Truth telling and advance planning at the end of life: Problems with autonomy in a multicultural world. Families, Systems & Health. 2002;20:213-228.

Cohen-Mansfield J. Development of a framework to encourage addressing advance directives when resources are limited. Journal of Aging and Health. 2002;14(1):24-41.

Cultural Diversity. Bioethics Forum. 2001;17(1):7-56.

Curtis JR. Communicating with patients and their families about advance care planning and end-of-life care. Respiratory Care. 2000;45(11):1385-1394; discussion 1394-1398.

Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD. The family conference as a focus to improve communication about end-of-life care in the intensive care unit: Opportunities for improvement. Critical Care Medicine. 2001;29(2 Suppl):N26-33.

Day LJ. Decision making by surrogates. Critical Care Nurse. 2000;20(2):107-111.

Ditto P, Danks J, Smucker W, Bookwala J, Coppola K, Dresser R, Fagerlin A, Gready R, Houts R, Lockhart L, Zyzanski S. Advance directives as acts of communication: A randomized controlled trial. Archives of Internal Medicine. 2001;161:421-430.

Drought TS, Koenig BA. "Choice" in end-of-life decision making: Researching fact or fiction? Gerontologist. 2002;42(Spec No 3):114-128.

Farrell PM, Hammes B. A promise for palliative care at the end of life. Wisconsin Medical Journal. 2001;100(9):59, 66.

Fins JJ. Commentary: From contract to covenant in advance care planning. Journal of Law, Medicine & Ethics. 1999;27:46-51.

Fins JJ, Solomon MZ. Communication in intensive care settings: The challenge of futility disputes. Critical Care Medicine. 2001;29(2 Suppl):N10-15.

Fins JJ, Schwagger Guest R, Acres CA. Gaining insight into the care of hospitalized dying patients: An interpretative narrative analysis. Journal of Pain and Symptom Management. 2000;20(6):399-407.

Fischer GS, Arnold RM, Tulsky JA. Talking to the older adult about advance directives. Clinics in Geriatric Medicine. 2000;16(2):239-254.

Freedman, B. Offering truth: One ethical approach to the uninformed cancer patient. Archives of Internal Medicine. 1993;153(5):572-6.

Glajchen M, Zuckerman C. Resolving conflict and making decisions. Journal of Palliative Medicine. 2001;4(2):221-225.

Hahn ME. MSJAMA. Advance directives and patient-physician communication. Journal of the American Geriatrics Society. 2003;289(1):96.

Hammes B. What does it take to help adults successfully plan for future medical decisions? Journal of Palliative Medicine. 2001;4:453-456.

Hammes BJ, Romer AL. The lessons from Respecting Your Choices: An interview with Bernard Hammes. Innovations in End-of-Life Care. 1999;1(1) www2.edc.org/lastacts/archives/archivesJan99/featureinn.asp.

Hammes BJ, Rooney BL: Death and end-of-life planning in one midwestern community. Archives of Internal Medicine. 1998;158:383-390.

Howes MC. Cancer isn't the only malignant disease. Terminal care should be discussed well in advance. British Medical Journal. 2002;324(7344):1036.

Hines S, Glover J, Babrow A, Holley J, Badzek L, Moss A. Improving advance care planning by accommodating family preferences. Journal of Palliative Medicine. 2001;4:481-489.

Kolarik RC, Arnold RM, Fischer GS, Tulsky JA. Objectives for advance care planning. Journal of Palliative Medicine. 2002;5(5):697-704.

Kuhl DR, Wilensky P. Decision making at the end of life: A model using an ethical grid and principles of group process. Journal of Palliative Medicine. 1999;2(1):75-86.

Lapine A, Wang-Cheng R, Goldstein M, Nooney A, Lamb G, Derse A. When cultures clash: Physician, patient, and family wishes in truth disclosure for dying patients. Journal of Palliative Medicine. 2001;4:475-480.

Leland J. Advance directives and establishing the goals of care. Primary Care. 2001:28(2):349-363.

Lynn J. Why I don't have a living will. Law, Medicine & Health Care. 1991;19:101-104.

Martin DK, Thiel EC, Singer PA. A new model of advance care planning: Observations from people with HIV. Archives of Internal Medicine. 1999;159:86-92.

Midwest Bioethics Center Staff and Members of the Cultural Diversity Task Force. Healthcare narratives from diverse communities--a self-assessment tool for healthcare providers. Bioethics Forum. 2002;17(3/4 Suppl):SS3-SS23.

Moss AH. The need for more physician communication with patients/families facing the end of life. West Virginia Medical Journal. 2001;97(4):206-208.

Norton SA, Talerico KA. Facilitating end-of-life decision-making: Strategies for communicating and assessing. Journal of Gerontological Nursing. 2000;26(9):6-13.

Perkins HS, Geppert CM, Gonzales A, Cortez JD, Hazuda HP. Cross-cultural similarities and differences in attitudes about advance care planning. Journal of General Internal Medicine. 2002;17(1):27-39.

Prendergast TJ. Advance care planning: Pitfalls, progress, promise. Critical Care Medicine. 2001;29(2 Suppl):N34-39.

Quill T. Initiating end-of-life discussion with seriously ill patients: Addressing the "elephant in the room." Journal of the American Medical Association. 2000;284:2502-2507.

Rantz M. Tough decisions: Helping patients' families choose long-term care. American Journal of Nursing. 2002;34(4):20.

Roter DL, Larson S, Fischer GS, Arnold RM, Tulsky JA. Experts practice what they preach: A descriptive study of best and normative practices in end-of-life discussions. Archives of Internal Medicine. 2000;160:3477-3485.

Schwartz CE, Wheeler HB, Hammes BJ et al. Early intervention in planning end-of-life care with ambulatory geriatric patients: Results of a pilot study. Archives of Internal Medicine. 2002;162:1611-1618.

Siegler EL, Levin BW. Physician-older patient communication at the end of life. Clinics in Geriatric Medicine. 2000;16)1):175-204.

Singer PA. Disease-specific advance directives. Lancet. 1994;344(8922):594-596.

Singer PA, Martin DK, Lavery JV, Thiel EC, Kelner M, Mendelssohn DC: Reconceptualizing advance care planning from the patient's perspective. Archives of Internal Medicine. 1998;158:879-884.

Sullivan MD. The illusion of patient choice in end-of-life decisions. American Journal of Geriatric Psychiatry. 2002;10(4):365-372.

Trusting Our Differences. Bioethics Forum. 2002;17(3/4):45.

Vinen J. Advance care planning and advance directives: Time for action. Internal Medicine Journal. 2002; 32(9-10):435-436.