Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, Filiberti A, Flechtner H, Fleishman SB, de Haes CJM, Kaasa S, Klee M, Osoba D, Razavi D, Rofe PB, Schraub S, Sneeuw K, Sullivan M, Takeda F, for the EORTC Study Group on Quality of Life: The European Organization for Research and Treatment of Cancer QLQ-C30: A quality-of-life instrument for use in international clinical trails in oncology. Journal of the National Cancer Institute. 1993;85:365-76.

Brenneis C. The interaction between family physicians and palliative care consultants in the delivery of palliative care: Clinical and educational issues. Journal of Palliative Care. 1998;14(3):58-61.

Bertolino M, Vinant P, Lassaunière JM, Les soins palliatifs chez les patients atteints de cancer digestif avancé. Gastro Enterologie Pratique. 1993;45: 4-6.

Bruera E, Neumann C, Brenneis C, Quan H. Frequency of symptom distress and poor prognostic indicators in palliative cancer patients admitted to a tertiary palliative care unit, hospices, and acute care hospitals. Journal of Palliative Care. 2000;16(3):16-21.

Bruera E, Neumann CM, Gagnon B, Brenneis C, Quan H, Hanson J. The impact of a regional palliative care program on the cost of palliative care delivery. Journal of Palliative Medicine. 2000;3(2):181-186.

Bruera E, Neumann CM, Gagnon B, Brenneis C, Kneisler P, Selmser P, Hanson J. Edmonton Regional Palliative Care Program: Impact on patterns of terminal cancer care. Canadian Medical Association Journal. 1999;161(3): 290-293.

Bruera E, Moyano J, Siefert L, Fainsinger RL, Hanson J, Suarez-Almazor M. The frequency of alcoholism among patients with pain due to terminal cancer. Journal of Pain and Symptom Management. 1995;10:599-603.

Bruera E, Suarez-Almazor M, Velasco A, Bertolino M, MacDonald S, Hanson J. The assessment of constipation in terminal cancer patients admitted to a palliative care unit: A retrospective review. Journal of Pain and Symptom Management. 1994;9:515-519.

Fainsinger RL. Palliative care in Edmonton. Supportive Care in Cancer. 1995;3(2):91-92.

Fainsinger Rl, Bruera E, MacMillan K. Innovative palliative care in Edmonton. Canadian Family Physician. 1997;43:1983-1991.

Fainsinger RL, Miller MJ, Bruera E, Hanson J, Mac Eachern T. Symptom control during the last week of life on a palliative care unit. Journal of Palliative Care. 1991;7:5-11.

Jørdhay MS, Fayers P, Saltnes T, Ahlner-Elmqvist M, Jannert M, Kaasa S. A palliative-care intervention and death at home: A cluster randomised trial. Lancet. 2000;356:888-93.

Kaasa S, Malt U, Hagen S, Wist E, Moum T, Kvikstad A. Psychological distress in patients with advanced cancer. Radiotherapy and Oncology. 1993;27:193-7.

Lawlor PG, Fainsinger RL, Bruera ED. Delirium at the end of life: Critical issues in clinical practice and research. Journal of the American Medical Association. 2000;284:2427-29.

Louie K, Bertolino M, Fainsinger R. Management of intractable cough. Journal of Palliative Care. 1992; 8:4: 46-48.

Platelet Transfusions in Advanced Hematological Malignancies : A position paper. Lassaunière JM, Hunnault M, Vespieren P, Moh-Klaren J, Bertolino M, Zittoun R, Colombat P. Journal of Palliative Care. 1996;12(I): 38-41.

Servicios especializados en Cuidados Paliativos. ¿Una necesidad? Bertolino M, Tatangelo M. Nuevas tendencias en Oncología. 1998;7(3): 285-286.

Soins palliatifs: Aspects généraux, traitement de la douleur de métastases osseuses, aspects psychologiques. Lassaunière JM, Bertolino M. In: Métastases Osseuses, D Bontoux, M Alcalay, (eds.). Poitiers: Expansion Scientifique Française. 1997, 146-157.

Wenk R, Bertolino M, Pusseto J. Direct medical costs of an Argentinean Domiciliary Palliative Care Model [letter]. Journal of Pain and Symptom Management. 2000;20(3):162-165.

Bruera E, MacMillan K, Hanson J, MacDonald RJ. The Edmonton staging system for cancer pain. Preliminary report. Pain. 1989;37:203-209.

Bruera E, Kuehn N, Miller MJ, Selmser P, MacMillan K. The Edmonton symptom assessment system (ESAS): A simple method for the assessment of palliative care patients. Journal of Palliative Care. 1991;7:6-9.

Axelsson B, Sjoden PO Assessment of quality of life in palliative care--psychometric properties of a short questionnaire. Acta Oncologica. 1999;38(2):229-37.

Axelsson B, Sjoden PO Quality of life of cancer patients and their spouses in palliative home care. Palliative Medicine. 1998;12(1):29-39.

Bowling A. Measuring Health: A Review of Quality of Life Measurement Scales, 2^nd Ed. Buckingham, England: Open University Press. 1997.

Bowling A. Measuring Disease: A Review of Disease-Specific Quality of Life Measurement Scales. Buckingham, England: Open University Press. 1995.

Boyd KJ. The role of specialist home care teams: views of general practitioners in South London. Palliative Medicine. 1995;9:138-44.

Bruera E, Miller MJ, McCallion J, MacMillan K, Krefting L, Hanson J. Cognitive failure (CF) in patients with terminal cancer: A prospective study. Journal of Pain and Symptom Management. 1992;7:192-5.

Bruley DK. Beyond reliability and validity: Analysis of selected quality-of-life instruments for use in palliative care. Journal of Palliative Medicine. 1999;2(3):299-309.

Byock IR, Merriman MP. Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index. Palliative Medicine. 1998;12(4):231-44.

Byock I. Hospice and palliative care: A parting of the ways or a path to the future? Journal of Palliative Medicine. 1998;1(2):165-176.

Campbell SM, Roland MO, Buetow SA. Defining quality of care. Social Science and Medicine. 2000;51:1611-1625.

de Graef A. Quality of Life in Head and Neck Cancer. Utrecht: University Medical Center, 1999.

Devery K, Lennie I, Cooney N. Health outcomes for people who use palliative care services. Journal of Palliative Care. 1999;14(2):5-12.

Dudgeon DJ, Harlos M, Clinch JJ. The Edmonton symptom assessment scale (ESAS) as an audit tool. Journal of Palliative Care. 1999;15(3):14-19.

Dudgeon DJ, Kristjanson L. Home vs. hospital death: Assessment of preferences and clinical challenges. Canadian Medical Association Journal. 1995;152:337-9.

Gomas J. Palliative care at home: A reality or "mission impossible"? Palliative Medicine. 1993;7:45-59.

Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W. A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. British Medical Journal. 1996;313:29-33.

Kanji T, Hanson J, Bruera E. Community liaison for terminally ill patients discharged from a cancer center. Supportive Care in Cancer. 1996;4(3):240.

King CR, Hinds PS. Quality of Life: From Nursing and Patient Perspectives. Boston: Jones and Bartlett Publishers, 2000.

Koch T. Life quality vs the 'quality of life': Assumptions underlying prospective quality of life instruments in health care planning. Social Science and Medicine. 51:419-427.

Letizia M, Zerby B, Hammer K, Tinnon W. The development of a hospice junior volunteer program. American Journal of Hospice & Palliative Care. 2000;17(6):385-388.

Manfredi PL, Morrison RS, Morris J, Goldhirsch SL, Carter JM, Meier DE. Palliative care consultations: How do they impact the care of hospitalized patients? Journal of Pain and Symptom Management. 2000;20:166-173.

McMillan SC, Weitzner M. How problematic are various aspects of quality of life in patients with cancer at the end of life? Oncology Nursing Forum. 2000;27(5):817-23.

McMillan SC, Weitzner M Quality of life in cancer patients: use of a revised Hospice Index. Cancer Practice. 1998;6(5):282-8.

McWhinney IR, Bass MJ, Orr V. Factors associated with location of death (home or hospital) of patients referred to a palliative care team. Canadian Medical Association Journal. 1995;152:361-7.

McWhinney IR, Stewart MA. Home care of dying patients. Family physicians' experience with a palliative care support team. Canadian Family Physician. 1994;40:240-6.

Nekolaichuk CL, Maguire TO, Suarez-Almazor M, Rogers WT, Bruera E. Assessing the reliability of patient, nurse, and family caregiver symptom ratings in hospitalized advanced cancer patients. Journal of Clinical Oncology. 1999;17(11):3621-3630.

Nekolaichuk CL, Bruera E, Spachynski K, MacEachern T, Hanson J, Maguire TO. A comparison of patient and proxy symptom assessments in advanced cancer patients. Palliative Medicine. 1999;13:311-323.

O'Boyle CA, Waldron D. Quality of life issues in palliative medicine. Journal of Neurology. 1997; 244 [Suppl 4]:S18-S25.

Philip J, Smith WB, Craft P, Lickiss N. Concurrent validity of the modified Edmonton symptom assessment system with the Rotterdam symptom checklist and the brief pain inventory. Supportive Care in Cancer. 1998;6:539-541.

Portenoy RK, Thaler HT, Kornblith AB, Lepore JM, Friedlander-Klar H, Coyle N, et al. Symptom prevalence, characteristics and distress in a cancer population. Quality of Life Research. 1994;183-9.

Salander P, Bergenheim AT, Henriksson R. How was life after treatment of a malignant brain tumor? Social Science and Medicine. 2000;51:589-598.

Singer PA, Martin DK, Kelner M. Quality end-of-life care. Patients' perspectives. Journal of the American Medical Association. 1999;281(2):163-168.

Somogyi-Zalud E, Zhong Z, Lynn J, Hamel MB. Elderly persons' last six months of life: findings from the Hospitalized Elderly Longitudinal Project. Journal of the American Geriatric Society. 2000;48(5 Suppl):S131-9.

Stewart AL, Teno J, Patrick DL, Lynn J. The concept of quality of life of dying persons in the context of health care. Journal of Pain and Symptom Management. 1999;17:93-108.

Tierney RM, Horton SM, Hannan TJ, Tierney WM Relationships between symptom relief, quality of life, and satisfaction with hospice care. Palliative Medicine. 1998;12(5):333-44.

Townsend J, Frank A, Fermont D, Dyer S, Karra O, Walgrove A, et al. Terminal cancer care and patients' preference for place of death: A prospective study. British Medical Journal. 1990;301:415-7.

Wood ML, McWilliam CL. Cancer in remission. Challenge in collaboration for family physicians and oncologists. Canadian Family Physician. 1996;42:899-910.

Zweibel NR Measuring quality of life near the end of life. Journal of the American Medical Association. 1988;260(6):839-40.