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Innovations in End-of-Life Care
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| I. | Dr. Christina Puchalski's Spiritual Assessment tool |
| II. | Websites and Resources directly related to contributors to this issue: |
1. National Institute for Healthcare Research (NIHR)
http://www.nihr.org
6110 Executive Blvd. Suite 908
Rockville, MD 20852, USA.
NIHR is an educational, medical, and social scientific research organization that
encourages professional collaboration to advance the understanding of spirituality
and health. The site includes summaries of recent research on faith, spirituality
and health as well as descriptions of past conferences and information on post-doctoral
fellowships.
2. The Kenneth B. Schwartz Center
100 Charles River Plaza
Suite 600
Boston, MA 02114-4719
Tel: 617 724-4746
www.theschwartzcenter.org
The Kenneth B. Schwartz Center is dedicated to supporting compassionate health
care and strengthening the relationship between patients and caregivers. The
Center seeks to achieve its goals through education, training and support;
advocacy and policy development and research. The Center is creating programs
it hopes will serve as models in a range of health care settings. The Center-a
non-profit organization housed at Massachusetts General Hospital (MGH)-is named
in memory of Ken Schwartz, a health care attorney who died of lung cancer at age
40. During his illness, he wrote a poignant account of his struggle with cancer,
which was published in the Boston Globe Magazine. Schwartz emphasized the need to
nurture the human connection in health care services, especially in the face of the
dramatic changes occurring in the health care field.
3. The Park Ridge Center for the Study of Health, Faith, and Ethics
http://www.prchfe.org
Laurence O'Connell is
president of the Park Ridge Center. It is an independent, nonprofit, nonsectarian
organization that conducts research, consultation and educational programs on issues
of health, faith, and ethics. They also publish The Bulletin, a newsletter
devoted to the connections between these domains.
4. Toolkit of Instruments to Measure End-of-Life Care (TIME)
http://www.chcr.brown.edu/pcoc/toolkit.htm
Dr. Joan Teno has built a "toolkit" which provides a comprehensive list of tools and references, including measurement instruments related to
palliative care. This site contains annotated bibliographies of tools, including a substantial section on spirituality prepared by Dr.
Christina Puchalski at http://www.chcr.brown.edu/pcoc/Spirit.htm
| III. | Related Tools and Websites: |
1. Harvard Mind/Body Medical Institute
http://mindbody.harvard.edu
2. The Nathan Cummings Foundation (NCF)
http://www.ncf.org/
A private foundation rooted in the Jewish tradition and committed to democratic values,
including fairness, diversity, and community. Access "Spiritual Beliefs and the Dying
Process: A Report on a National Survey" conducted for NCF and the Fetzer Institute by
the George H. Gallup International Institute at
http://www.ncf.org/ncf/publications/reports/fetzer/fetzer_contents.html
3. Spirit Care
Daughters of Charity, National Health System
801 No. Second St. Suite 306
St. Louis, MO 63102
Tel: 314 436-4033
Two videotapes
designed by Daughters of Charity for use by groups to initiate discussion of spiritual health
care in organizations are available: An Invitation to Healing: a baseline concept of
spiritual health care and Called to Care: caregivers reflect on spiritual health care.
The goal of these videos is to focus on the meaning of spiritual health, as well as to increase
viewers' awareness and intentionality of their role in providing spiritual health care.
4. Supportive Care of the Dying: A Coalition for Compassionate Care
http://www.careofdying.org/
The coalition is made up of thirteen Catholic healthcare organizations and the Catholic Health Association.
The three priorities of the coalition are research, developing models of comprehensive, community-based, supportive
care for dying people, and creating a professional development program. The site has a variety of tools and resources
including "Hints for Conducting Focus Groups" and back issues of Supportive Voice, the newsletter of the coalition.
5. The John Templeton Foundation
http://www.templeton.org
This archived issue:
Archive Issue Home |
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On-line Discussion
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| Last Updated: October 30th, 2000 |
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