Innovations in End-of-Life Care
an international journal of leaders in end-of-life care

FROM CONTRIBUTORS TO THIS ISSUE:

Barrett RK. Sociocultural Considerations for Working Blacks Experiencing Loss and Grief. In Living With Grief: Who We Are, How We Grieve, K Doka (ed.). Washington, DC: Taylor & Francis, 1998, 83-96.

Barrett RK. Psychocultural Influences on African-American Attitudes Towards Death, Dying, and Funeral Rites. In Dying, Death and Bereavement, Third Edition, G Dickinson, M Lemming, A Mermann (eds.). Guilford, CT: Dushkin Publishing Group, 1995, 173-178.

Barrett RK. Contemporary African-American Funeral Rites and Traditions. In The Path Ahead: Readings in Death and Dying, L Despelder, A Strickland (eds.). Mountain View, CA: Mayfield Publishing Co., 1995, 80-92.

Barrett, RK. Children and Traumatic Loss. In Children Mourning, Mourning Children, K Doka (ed.). Washington, DC: Taylor & Francis, 1995, 85-88.

Barrett RK. The legacy of traditional African-American funeral rites. Thanos: The Journal of the International Federation of Thantologists Associations—Federation Internationale des Associations de Thanatologues. 1994;18-20.

Barrett RK. Psychocultural Influences on African-American Attitudes Towards Death, Dying, and Funeral Rites. In Personal Care in an Impersonal World, J Morgan (ed.). Amityville, NY: Baywood Press, 1993, 213-230.

Block SD, Bernier GM, Crawley LM, Farber S, Kuhl D, Nelson W, O'Donnell J, Sandy L, Ury W. Incorporating palliative care into primary care education. Journal of General Internal Medicine. 1998;13(11):768-773.

Crawley, LM, Marshall P, Koenig B. Respecting cultural differences at the end of life. In Physician’s Guide to End-of-Life Care, L Snyder and TE Quill (eds.). Philadelphia, PA: American College of Physicians-American Society of Internal Medicine, 2001, 35-55.

Crawley, LM. African American Participation in Clinical Trials: Situating Trust and Trustworthiness. In For the Health of the Public: Ensuring the Future of Clinical Research, Volume II, RE Meyer (ed.). Washington, DC: Association of American Medical Colleges, 2000, 17-24.

Crawley LM, Payne R, Bolden J, Payne T, Washington P, Williams S. Palliative and end-of-life care in the African American community. Journal of the American Medical Association. 2000;284(19):2518-2521.

Crawley LM. Death and difference: The value of narratives in cross-cultural work. Center for Literature, Medicine and the Health Professions News. 2000;12:5-6.

Freeman, HP, Payne R. Racial injustice in health care. New England Journal of Medicine. 2000; 342(14):1045-1047.

Payne R. Palliative Care for African Americans and Other Vulnerable Populations: Access and Quality Issues. In Improving Palliative Care for Cancer, KM Foley, H Gelband (eds.). Washington, DC: National Academy Press, 2001, Chapter 5.

Payne R, Hill CS, Pratt RB. (eds.) Assessment and Treatment of Cancer Pain: Progress in Pain Research and Management, Volume 12. Seattle, WA: IASP Press, 1998.

Williams BR, Padgett CG. The emerging role of the sociologist in palliative care settings. Sociological Spectrum. 2001;21(3):265-277.

Blackhall LJ, Frank G, Murphy ST, Michel V, Palmer JM, Azen SP. Ethnicity and attitudes towards life sustaining technology. Social Science &Medicine. 1999;48(12):1779-1789.

Blackhall, LJ, Murphy ST, Frank G, Michel V, Azen S. Ethnicity and attitudes toward patient autonomy. Journal of the American Medical Association. 1995;274(10):820-825.

Bloche GM, Nelson A. Unequal treatment: Race at the bedside. National Academies Op-Ed Service, 22 March 2002, www4.nationalacademies.org/onpi/oped.nsf/.

Borum ML, Lynn J, Zhong Z. The effects of patient race on outcomes in seriously ill patients in SUPPORT: An overview of economic impact, medical intervention, and end-of-life decisions. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Journal of the American Geriatrics Society. 2000 May;48(5):S194-198.

Brice, C. Lead Me Home: An African American’s Guide Through the Grief Journey. New York, NY: Avon Books, 1999.

Brown, JA. Social Work Practice with the Terminally Ill in the Black Community. In Social Work Practice with the Terminally Ill: A Transcultural Perspective, JK Parry (ed.). Springfield, IL: Charles C. Thomas, 1990, 67-82.

Burrs, FA. The African American experience: Breaking the barriers to hospices. The Hospice Journal. 1995;10(2):15-18.

Caralis, PV, Davis B, Wright K, Marcial E. The influence of ethnicity and race on attitudes toward advance directives, life-prolonging treatments, and euthanasia. Journal of Clinical Ethics. 1993;4(2):155-165.

Creel M. Gullah attitudes toward life and death. In Africanisms in American culture, J Holloway (ed.). Bloomington, IN: Indiana University Press, 1991, 69-97.

Devore W. The experience of death: A Black perspective. In Social Work Practice with the Terminally Ill: a Transcultural Perspective. JK Parry (ed.). Springfield, IL: Charles C. Thomas, 1990, 47-66.

Dula A. The life and death of Miss Mildred…the life story of an elderly Black woman in the rural south. Clinics in Geriatric Medicine. 1994;10(3):419-430.

Dupree CY. The attitudes of Black Americans toward advance directives. Journal of Transcultural Nursing. 2000;11(1):12-18.

Field MJ, Cassel CK. (eds.) Approaching Death: Care at the End of Life. Washington, DC: National Academy Press, 1997.

Gaffin J, Hill D, Penso D. Opening doors: Improving access to hospice and specialist palliative care services by members of the Black and minority ethnic communities. British Journal of Cancer. 1996;29:S51-53.

Gordon AK. Deterrents to access and service for Blacks and Hispanics: The Medicare Hospice Benefit, healthcare utilization, and cultural barriers. Hospice Journal. 1995;10(2):65-83.

Green J. Death with dignity: The Afro-Caribbean community. Nursing Times. 1992;88(8):50-51.

Haber D. Minority access to hospice. The American Journal of Hospice & Palliative Care. 1999;16(1):386-389.

Harper, BC. Report from the National Task Force on Access to Hospice Care by Minority Groups. Hospice Journal. 1995;10(2):1-9.

Harper BC. Doing the right thing: Three strategies for increasing minority involvement. Hospice Journal. 1990 Spring;14-15.

Holloway K. Passed On: African American Mourning Stories. Durham, NC: Duke University Press, 2002.

Hopp FP, Duffy SA. Racial variations in end-of-life care. Journal of the American Geriatrics Society. 2000;48(6):658-663.

Johnson-Moore P, Phillips LJ. Black American Communities: Coping with Death. In Aids and the New Orphans: Coping with Death, BO Dane and C Levine (eds.). Westport, CT: Auburn House, 1994, 101-120.

Karim K, Bailey M, Tunna K. Nonwhite ethnicity and the provision of specialist palliative care services: Factors affecting doctors’ referral patterns. Palliative Medicine. 2000;14(6):471-478.

Koenig, B, Gates-Williams J. Understanding cultural differences in caring for dying patients. Western Journal of Medicine. 1995;163(3):244-249.

Krakauer EL, Truog RD. Mistrust, racism, and end-of-life treatment. Hastings Center Report. 1997;27(3):23:23-25.

Lawrence-Lightfoot S. Respect. Reading, MA: Perseus Books, 1999.

McKinley ED, Garrett JM, Evans AT, Danis M. Differences in end-of-life decision making among Black and White ambulatory cancer patients. Journal of General Internal Medicine. 1996;11(11):651-656.

Mebane EW, Oman RF, Kroonen LT, Goldstein MK. The influence of physician race, age, and gender on physician attitudes toward advance care directives and preferences for end-of-life decision making. Journal of the American Geriatrics Society. 1999;47(5):579-591.

Mitka M. Suggestions for when help is near. Journal of the American Medical Association. 2000;284(19):2441-2442.

Moore BA. Follow up report, Kansas City site. Supportive Voice. 2001;7(1):14-15.

Neubauer BJ, Hamilton CL. Racial differences in attitudes toward hospice care. The Hospice Journal. 1990;6(1)37-48.

Noggle BJ. Identifying and meeting needs of ethnic minority patients. The Hospice Journal. 1995;10(2):85-93.

Omara AM, Arenella C. Minority representation, prevalence of symptoms, and utilization of services in a large metropolitan hospice. Journal of Pain Symptom Management. 2001;21(4):290-297.

Parry J, Ryan A. A Cross Cultural Look at Death, Dying and Religion. Stamford, CT: Wadsworth Publishing Co., 1995.

Reese DJ, Ahern RE, Nair S, O’Faire JD, Warren C. Hospice access and use by African Americans: Addressing cultural and institutional barriers through participatory action research. Social Work. 1999;44(6):549-559.

Sullivan MA. May the Circle be Unbroken: The African-American Experience of Death, Dying, and Spirituality. In A Cross-Cultural Look at Death, Dying, and Religion, JK Parry and AS Ryan (eds.). Chicago, IL: Nelson-Hall Publishers: 1995, 160-171.

Taylor A, Box M. Multicultural Palliative Care Guidelines. Eastwood, South Australia: Palliative Care Council of South Australia, 1999.

Tucker RT. Patient self-determination act: An African American perspective. Cambridge Quarterly of Healthcare Ethics. 1994;3(3):417-419.

Waters CM. Understanding and supporting African Americans; perspectives of end-of-life care planning and decision making. Qualitative Health Research. 2001;11(3):385-398.

Waters CM. End-of-life care directives among African-Americans: Lessons learned—a need for community-centered discussions and education. Journal of Community Health Nursing. 2000;17(1):25-37.