Innovations in End-of-Life Care
an international journal of leaders in end-of-life care
Vol. 1, No. 5, 1999
Resources and Tools
I. Websites Related to this Issue's Contributors
1. New Website of the European Association of Palliative Care (EAPC)
http://www.eapcare.org
The EAPC was founded with 40 individual members in 1988. It is now a federation of national and
regional societies of palliative care, representing over 25,000 individuals across Europe and other
parts of the world. The website at present serves as an information source about the EAPC and its
activities including descriptions of publications and congresses. The website also offers a directory o
f participating organizations around the world including contact names and addresses. Many resources
are available in French and English, and congresses offer simultaneous interpretation of all sessions.
A number of Innovations' editorial board members play leadership roles in this organization, including
Dr. Stein Kaasa who is the incoming president.
2. Sociedad Española de Cuidados Paliativos (SECPAL)
http://www.secpal.com/
This is the website for the Spanish Association of Palliative Care; all content is in Spanish. Extensive information
on the association as well a clinical guide to palliative care, Cuidados Paliativos: Recomendaciones
de la Sociedad Española de Cuidados Paliativos (SECPAL), can be found at
http://www.secpal.com/guia.html. Access to the journal Medicina Paliativa is also available at
http://www.secpal.com/revista.html.
3. For more information about the Palliative Care and Home Hospice Program at Northwestern Memorial Hospital, in Chicago, Illinois please contact the current director: Dr. Cameron Muir via e-mail at greatscot@nwu.edu.
4. Edmonton Palliative Care Program.
http://www.palliative.org/
An extensive palliative care site for both professional and non-professional audiences, offered by the Division
of Palliative Medicine, Department of Oncology, University of Alberta, Edmonton, Canada and The Edmonton Regional
Palliative Care Program. The purpose of the site is to acquaint the visitor with the basic philosophy of palliative
care, and its workings in centres large or small. Content includes clinical information, patient assessment tools,
cancer material, and links to related resources.
5. San Diego Hospice.
http://www.sdhospice.com/
II. Other Relevant Websites
| Website | Description |
| American Academy of Hospice and Palliative Medicine http://www.aahpm.org/ |
The website provides an overview of the organization
and its mission, information on events, activities, publications and products of AAHPM. |
| Association Internationale Ensemble contre la douleur http://www.sans-douleur.ch/ |
Ensemble contre la douleur is a francophone nonprofit organization founded in 1997 in Geneva, Switzerland
by leaders in pain management. The site hosts information primarily in French and has information on its
two campaigns: Vers un hopital sans douleur (Toward a Pain Free Hospital) and Vivre avec le cancer sans douleur
(Living with Cancer, without Pain). The site hosts a bibliography with both French and English entries as well
as a resource page providing links to French and English pain related websites at
http://www.sans-douleur.ch/ai_fress.htm and a French speaking list serve
sans-douleur accessible from the homepage. |
| Australasian Palliative Link International http://www.eisa.net.au/~barbato |
APLI is a group of palliative care personnel and supporters
interested in the development of palliative care globally. The site provides a forum for the exchange of
information, ideas and initiatives of individuals and services and seeks to raise awareness of the needs
of developing services and formulate strategies for applying existing knowledge to local problems. |
| European Journal of Palliative Care (EJPC) http://www.ejpc.co.uk |
EJPC is the official journal of the European
Association of Palliative Care, and is published six times a year. This website posts abstracts
from the current and back issues of this print journal, as well as offering an international
calendar of palliative care events. |
| HELP: Helpful Essential Links to Palliative Care http://www.dundee.ac.uk/MedEd/ help/welcome.htm |
This site is hosted by the Centre for Medical Education, University
of Dundee. Intended for an audience of medical professionals, this site has an emphasis on management of advanced
cancer. Content includes pain management, management of distressing symptoms, communication issues, and emotional
support for persons facing death and their loved ones. |
| Hospice Foundation of America http://www.hospice foundation.org/ |
Hospice Foundation of America is the nation's largest charity whose
sole mission is to promote the hospice concept of care and which is supported primarily by individual donations. |
| Hospice & Palliative Nurses Association(HPNA) http://www.hpna.org/ |
HPNA is the only hospice and palliative nurses' professional association.
Its purpose is to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice
and palliative nursing; and to study and promote hospice and palliative nursing research. |
| National Council for Hospice and Specialist Palliative Care Service http://www.hospice-spc-council.org.uk |
The Council is the representative and coordinating body for all those working
in hospice and specialist palliative care in England, Wales, and Northern Ireland. The website provides information on a
number of publications on hospice care intended both for the general public and for professional care providers, including
a directory of all hospice services in the UK. |
| National Hospice Organization http://www.nho.org/ |
NHO is dedicated to promoting and maintaining quality care for
terminally ill persons and their families, and to making hospice an integral part of the US health care system.
More than 2,400 hospices are Provider Members of NHO and more than 5,000 hospice professionals and volunteers
have joined NHO as members of the National Council of Hospice Professionals (NCHP). |
| Palliative Medicine Program at the Medical College of Wisconsin
http://www.mcw.edu/pallmed |
This site offers a variety of educational services and information for health
care professionals about pain management and end-of-life care. |
| United Hospital Fund Hospital Palliative Care Initiative http://www.uhfnyc.org/initiat/ initiat.htm |
This initiative is designed to improve how New York City's hospitals care for patients
near the end of life and their families. The project has gathered extensive data about hospital deaths and is now developing,
implementing and testing a variety of approaches to improve care for dying patients in five hospitals. |
| University of Ottawa Institute of Palliative Care http://www.pallcare.org/ |
The University of Ottawa Institute of Palliative Care is a
Canadian academic centre for research and advanced inter-disciplinary education in hospice and palliative care.
This site contains background information on the Institute, general information about Canadian palliative care
and access to two newsletters (Pall-Connect and News Brief) for health care professionals. The site also
includes an active conference area and discussion forum for the Canadian palliative care professionals. |
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