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A. ORIGINAL TOOLS FROM HOSPICE & PALLIATIVE CARECENTER:
CHF Self Care Calendar
© 2003 Hospice & Palliative CareCenter. Published here with
permission.
COPD Self Care Calendar
© 2003 Hospice & Palliative CareCenter. Published here with
permission.
To obtain a copy of the CHF or COPD workbook for patients and family
caregivers, contact Betsy Clark, RN, CHPN or Terrie Spease, LPN via telephone
at (336)768-3972, or email at betsy.clark@hospicecarecenter.org
or terrie.spease@hospicecarecenter.org.
The cost is $11 plus shipping.
B. WEBSITES RELATED TO THIS ISSUE'S CONTRIBUTORS:
American Hospital Association (AHA)
www.hospitalconnect.com/aha/awards-events/circle_of_life/index.html
AHA is a key sponsor of the 2003 Circle of Life Award. Visit this site
for more information about this year's award and/or to apply for next
year's award. Applications for the 2004 award are due on August 15, 2003.
Hospice & Palliative CareCenter (HPCC)
www.hospicecarecenter.org
HPCC is guided by the principles of raising public expectations and improving
the quality of end-of-life care as it seeks new and creative ways to increase
understanding and improve the delivery of care near the end of life. To
achieve these goals, HPCC has developed close relationships with a wide
range of health care providers in medical centers, long-term care facilities,
and community organizations in order to improve professional and public
education about end-of-life and palliative care and deliver home and hospice
care to diverse populations, including people with chronic,
life-threatening conditions, and nursing home residents.
Institute for Healthcare Improvement (IHI)
www.ihi.org
IHI is a Boston-based, independent, nonprofit organization working since
1991 to accelerate improvement in health care systems in the United States,
Canada, and Europe by fostering collaboration, rather than competition,
among health care organizations. IHI was a sponsor, with Rand Center to
Improve Care of the Dying (presently known as the Washington Home Center
for Palliative Care Studies), and the Department of Veterans Affairs,
of the Breakthrough Series Collaborative to improve end-of-life care.
Providence Health System
End-of-Life Care Program
www.providence.org
End-of-life care is one of the five clinical priorities at Providence
Health System. The philosophy behind this program is to be proactive,
and span the entire continuum of care—from addressing advance care planning
to supporting families through bereavement—while carrying out its healing
ministry, with special concern for the poor and vulnerable.
Supportive Care of the Dying: A Coalition for Compassionate Care
www.careofdying.org
The three priorities of the coalition are research, developing models
of comprehensive, community-based, supportive care for dying people, and
creating a professional development program. The site has a variety of
tools and resources and back issues of Supportive Voice, a quarterly
newsletter that allows readers to share in the experiences and challenges
of members and professional colleagues in order to help improve end-of-life
care. Providence Health System is a founding member of this coalition.
University of California Davis Health System
West Coast Center for Palliative Education and Research (WCCPER)
www.ucdmc.ucdavis.edu
WCCPER strives to raise the standards of end-of-life care by enhancing
the quality, appropriateness, and effectiveness of palliative care services,
and access to such services, particularly for underserved populations,
from those participating in aggressive cancer clinical trials to patients
living in isolated rural areas or correctional settings. The center is
one of the first in the country to promote independent, innovative research,
training, and care modules in all aspects of palliative care.
C. OTHER RELATED WEBSITES:
Promoting Excellence in End-of-Life Care
www.promotingexcellence.org
A national program office of The Robert Wood Johnson Foundation with direction
and technical assistance provided by the Practical Ethics Center at the
University of Montana, Promoting Excellence has funded more than 20 projects
to improve palliative care in different parts of the United States.
The website includes Program Evaluation Tools
developed or used by its grantees and a resource of validated, published
Key Clinical Assessment and Research Tools used in the field of palliative
care. Relevant to this issue are the following tools:
www.promotingexcellence.org/instruments/index.html
[Note: search Key Clinical Assessment and Research Tools and scroll
down to view the alphabetical list of tools]
The FACT-G was developed by David Cella, PhD, Professor of Psychiatry
and Behavioral Science at Northwestern University Medical School and is
used to measure quality of life for patients with advanced disease.
www.promotingexcellence.org/hov
PhoenixCare is a program that cares for patients diagnosed with metastatic
cancer, chronic obstructive pulmonary disease and congestive heart failure.
Its tools include an Initial Clinical Assessment, After Death Surrogate
Interview and more than 70 fact sheets for patients and families.
The Washington Home Center for Palliative Care Studies
www.medicaring.org
Formerly the Rand Center to Improve Care of the Dying, CPCS offers expert
support to hospitals, nursing homes, health systems, hospices, and other
organizations that serve individuals nearing the end of life. CPCS has
worked with nearly one hundred health care organizations to implement
effective quality improvement projects in end-of-life care. With the Institute for Healthcare
Improvement (IHI), the Center has directed two successful Breakthrough
Series Collaboratives on improving end-of-life care and published the
results of these efforts in its authoritative book, Improving
Care at the End of Life: A Sourcebook for Clinicians and Managers.
Teams from Hospice & Palliative CareCenter and Providence Health System
that participated in the Collaborative on CHF and COPD are featured in
this issue of Innovations.
CPCS has also published two guides for family
caregivers of patients with CHF or COPD, which grew out of the 1999 Collaborative
focused on palliative care for patients with CHF and COPD. Living with
Advanced Lung Disease: A Guide for Family Caregivers and Living
with Advanced Congestive Heart Failure: A Guide for Family Members, authored
by Anne Wilkinson, MD, are both available for download from www.medicaring.org.
Two earlier issues of Innovations in End-of-Life Care relate closely
to two of this issue's Featured Innovations:
 "Building Bridges
for Better Continuity of Care." Innovations in End-of-Life Care.
2000;2(5): www2.edc.org/lastacts/archives/archivesSept00/default.asp.
This issue spotlights AHA Circle of Life Award winner Franciscan Health
System West's bridge program, after which the Providence program was modeled.
"Reinterpreting
Comprehensive Cancer Care." Innovations in End-of-Life Care.
2002;4(4): www2.edc.org/lastacts/archives/archivesJuly02/default.asp
This issue highlights the work of fellow
Promoting Excellence grantee Project Safe Conduct, winner of one of the
2002 AHA Circle of Life Awards. Project Safe Conduct represents another
effort to bring palliative care to patients with cancer even as they may
be pursuing curative treatments.
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